CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 526 - 550 of 675

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1907-C10896	C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1907-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10855	C10855	Grip strength maximum measurement	Measurement of the maximum grip strength attained in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10858	C10858	Grip strength target value	Value of the target grip strength for the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10859	C10859	Grip strength fatigue percent target value	Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10860	C10860	Grip strength fatigue percent target hold duration	Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04501	C04501	ECG assessment date and time	Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04502	C04502	ECG global result type	Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04503	C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04504	C04504	ECG heart rhythm result type	Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04505	C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04507	C04507	ECG complete bundle branch block status	Status of complete bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04508	C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04509	C04509	ECG PR interval	Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C04510	C04510	ECG QRS duration	Duration in milliseconds (msec) of the QRS complex for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

Displaying 526 - 550 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.