CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19520 Subject affected indicator

Indicator for the subject's being affected

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19521 Thyroid condition type

Type of thyroid condition

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19522 Muscle disease hereditary type specify text

Specify text for type of hereditary muscle disease

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19523 Muscle disease inflammatory type specify text

Specify text for type of inflammatory muscle disease

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19524 Diagnosis date

Date of diagnosis

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19676 Muscle disease hereditary type

Specify if muscle disease type is hereditary

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19677 Muscle disease inflammatory type

Specify if muscle disease type is inflammatory

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19704 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator

Indicator of stiffness felt within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19705 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment scale

Scale of amount of stiffness within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19706 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment indicator

Indicator of pain felt within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19707 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment scale

Scale of amount of pain within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19708 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator

Indicator of weakness felt within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19709 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale

Scale of amount of weakness within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19710 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator

Indicator of tiredness or fatigue within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19711 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale

Scale of amount of tiredness or fatigue within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12803 Gene variant mutation implications confirmed mRNA analysis indicator

Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12804 Gene cDNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12806 Gene protein variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19749 Mutational analysis tissue specimen type

Type of tissue used for analysis

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 476 - 500 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.