CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1087-C12655	C12655	Global impression change physician score	The physician reported global impression of change score	Supplemental	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1087-C17981	C17981	Other measure severity text	The text describing the specifics of the other measures of severity to test MG	Supplemental	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12811	C12811	Thymectomy date and time	Date and time (if applicable and known) thymectomy procedure was performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12812	C12812	Thymectomy technique type	Type of technique used for the thymectomy procedure	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12813	C12813	Thymectomy transcervical type	The type of transcervical thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12814	C12814	Thymectomy videoscopic type	The type of videoscopic thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12815	C12815	Thymectomy transsternal type	The type of transsternal thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12816	C12816	Thymus non-thymoma histology grade	Results from the non-thymoma thymus histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12817	C12817	Thymoma histology grade	The World Health Organization (WHO) grade for thymoma histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C17982	C17982	Thymectomy procedure comment text	Additional text commenting the thymectomy procedure	Supplemental	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C04800	C04800	Death cause text	Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C12610	C12610	Death location type	Type of location where the participant/subject died	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C21665	C21665	Death cause ICD-10-CM code	ICD-10-CM code that describes the cause of participant/subject's death	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C00002	C00002	Post conceptional age value	Gestational age plus postnatal age of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C00003	C00003	Postnatal age value	Time elapsed after birth of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C12603	C12603	Birth length value	Measurement of the participant's/subject's length at birth	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C12604	C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.