CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2743-C58421	C58421	White blood cell count unit of measure	Unit of measure for reporting white blood cell count	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58422	C58422	Red blood cell count unit of measure	Unit of measure for reporting red blood cell count	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58423	C58423	Total protein value unit of measure	Unit of measure for reporting total protein measurement	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58424	C58424	Saliva collection stimulation use text	Describe stimulation used in saliva collection	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58425	C58425	Saliva collection oral hygiene use text	Describe oral hygiene used in saliva collection	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58426	C58426	Biomarker specimen collected aliquot number	The number of aliquots made for specimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58427	C58427	Biomarker specimen collected aliquot volume value	The volume per aliquot for pecimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58428	C58428	Biomarker specimen collected aliquot cell number	The cells per aliquot for specimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58429	C58429	Biomarker specimen collected final storage temperature value	The final storage temperature for specimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58461	C58461	Medication initial dose	Initial dose of medication taken per administration prior to adjustments	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58462	C58462	Medication initial frequency	Initial frequency of medication taken per administration prior to adjustments	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58463	C58463	Medication adjusted frequency	Adjusted frequency of medication taken per administration prior to adjustments	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58464	C58464	Blood collection tube lysing stabilizing media text	Free-text field to specify lysing/stabilizing media used in blood collection tube	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58465	C58465	Blood collection tube lysing stabilizing media concentration value	Free-text field to specify concentration of lysing/stabilizing media used in blood collection tube	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58466	C58466	Biomarker specimen collected vial type	The type of vial used for specimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58467	C58467	Biomarker specimen collected vial brand name	The brand name of vial used for specimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2743-C58468	C58468	Biomarker specimen collected vial catalog number	The catalog number of vial used for specimens collected from the participant/subject for biomarkers	Supplemental	Biomarker-Related Sample and Collection Questions	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Exploratory	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C17402	C17402	Site name	The name of the site for the study	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C19256	C19256	Study protocol name	Name of study protocol	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.