CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2742-C57322	C57322	Health problem interfere exercising average scale	Scale related to how much an individual's health problems interfere with his/her exercising on average	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57324	C57324	Health problem interfere exercising good day scale	Scale related to how much an individual's health problems interfere with his/her exercising on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57326	C57326	Health problem interfere exercising bad day scale	Scale related to how much an individual's health problems interfere with his/her exercising on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57329	C57329	Health problem interfere socializing average scale	Scale related to how much an individual's health problems interfere with his/her socializing on average	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57331	C57331	Health problem interfere socializing good day scale	Scale related to how much an individual's health problems interfere with his/her socializing on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57332	C57332	Health problem interfere socializing bad day scale	Scale related to how much an individual's health problems interfere with his/her socializing on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57337	C57337	Health problem interfere bathing average scale	Scale related to how much an individual's health problems interfere with his/her bathing on average	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57340	C57340	Health problem interfere bathing good day scale	Scale related to how much an individual's health problems interfere with his/her bathing on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57343	C57343	Health problem interfere bathing bad day scale	Scale related to how much an individual's health problems interfere with his/her bathing on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57347	C57347	Severity fatigue average day over month type	Type of fatigue severity faced on an average day over the past few months	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57353	C57353	Fatigue require reduction average activity half normal indicator	Indicator of whether the individual has had to lower his/her average activity level below half of what was his/her nomral level before becoming ill	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57360	C57360	Activity affect by fatigue status	Status of how an individual's activities have been affected by tiredness, weariness or fatigue	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57368	C57368	Course of illness status	Status of how the individual would describe the status of his/her illness	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57369	C57369	Live with help indicator	Indicator of whether the individual lives with someone who can take care of him/her	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57370	C57370	Tired year duration	Duration of how long and individual has been tired (in years)	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57371	C57371	Tired month duration	Duration of how long and individual has been tired (in months)	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57431	C57431	Go out house frequency month category	Category of the frequency the individual goes out of the house for any reason within a month	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57438	C57438	Daily activity sleep good day duration	Duration of how long an individual spends sleeping (in hours) on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57440	C57440	Daily activity sleep bad day duration	Duration of how long an individual spends sleeping (in hours) on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57444	C57444	Daily activity bed chair good day duration	Duration of how long an individual spends doing activities in bed or chair (ex. TV, audiobooks) (in hours) on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57452	C57452	Daily activity bed chair bad day duration	Duration of how long an individual spends doing activities in bed or chair (ex. TV, audiobooks) (in hours) on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57456	C57456	Daily activity light good day duration	Duration of how long an individual spends doing light activities (example, use computer at desk, microwave a meal, pay bills) (in hours) on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57462	C57462	Daily activity light bad day duration	Duration of how long an individual spends doing light activities (example, use computer at desk, microwave a meal, pay bills) (in hours) on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57463	C57463	Daily activity moderate good day duration	Duration of how long an individual spends doing moderate activities (example, shopping) (in hours) on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57464	C57464	Daily activity moderate bad day duration	Duration of how long an individual spends doing moderate activities (example, shopping) (in hours) on a bad day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.