CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60337	C60337	Mitochondrial disease genetic tests pancreas result text	The free-text field related to the participant's genetic test results	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60338	C60338	Mitochondrial disease fecal elastase test indicator	Indicator of whether the participant had fecal elastase testing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60339	C60339	Mitochondrial disease fecal elastase test result status	Status to the participant's fecal elastase test result status	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60340	C60340	Mitochondrial disease pancreatic enzyme replacement therapy indicator	Indicator of whether the participant had pancreatic enzyme replacement therapy indicator	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60341	C60341	Mitochondrial disease chronic pain medication pancreatitis indicator	Indicator of whether the participant is taking chronic pain medication for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59706	C59706	Blood pressure cuff size unit of measure	The unit of measure for the blood pressure cuff size	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59709	C59709	Blood pressure cuff size value	Size of the blood pressure cuff used to measure the participant's blood pressure	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59710	C59710	Temperature unit agnostic value	Measurement of the participant's body temperature	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59711	C59711	Temperature measurement anatomic site other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text.	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60342	C60342	Triceps skinfold thickness value	Value of the triceps skinfold (back side middle upper arm) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60343	C60343	Subscapular skinfold thickness value	Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C20006	C20006	Bone fracture indicator	The indicator related to having a bone fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59716	C59716	Medication steroid mouth current indicator	Indicator of whether the participant is taking any oral steroids by mouth	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59717	C59717	Medication steroid inhaler current indicator	Indicator of whether the participant is taking any steroids by inhaler	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59718	C59718	Medication steroid IV current indicator	Indicator of whether the participant is taking any steroids by IV	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59719	C59719	Medication seizure current indicator	Indicator of whether the participant is taking any seizure medications	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59720	C59720	Medication oral contraceptive current indicator	Indicator of whether the participant is currently taking oral contraceptives	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59721	C59721	Medication estrogen current indicator	Indicator of whether the participant is currently taking any estrogen forms (pill, patch, cream, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59722	C59722	Medication depo-provera current indicator	Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59723	C59723	Medication other progesterone current indicator	Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59724	C59724	Medication testosterone HCG current indicator	Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 901 - 925 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.