CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 701 - 725 of 1834

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3095-C19617	C19617	Height Z score	The number of standard deviations the measured height of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19618	C19618	Height standard infant use type	Indicator of whether WHO or CDC growth charts were used in height Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19619	C19619	Weight length Z Score	The number of standard deviations the measured weight/length of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19620	C19620	Weight length standard infant use type	Indicator of whether WHO or CDC growth charts were used in weight/length Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19621	C19621	BMI Z score	The number of standard deviations the calculated BMI of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19622	C19622	BMI standard infant use type	Indicator of whether WHO or CDC growth charts were used in BMI Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19623	C19623	Head circumference percentile value	Value of the participant's head circumference percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19624	C19624	Head circumference Z score	The number of standard deviations the measured head circumference of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19625	C19625	Head circumference standard infant use type	Indicator of whether WHO or CDC growth charts were used in head circumference Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19631	C19631	Weight pediatric measurement	Measurement of weight for a pediatric participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19632	C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19633	C19633	Height pediatric unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19634	C19634	Body mass index pediatric value	Value of the participant's body mass index, calculated from height and weight, age	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20003	C20003	Hypoglycemia diagnosis indicator	The indicator related to having hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20004	C20004	Hypoglycemia diagnosis type	The type related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20005	C20005	Hypoglycemia symptom diagnosis text	The free-text field related to 'Hypoglycemia diagnosis type', specifying the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20269	C20269	Insulin delivery method last use type	The insulin delivery method used most recently by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C58756	C58756	Lab test result standard unit of measure	Unit of measure for the laboratory test result from a standardized list	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59704	C59704	Hyperglycemia history indicator	Indicator of whether the participant has a history of hyperglycemia (high blood glucose)	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59705	C59705	Pre-diabetes diagnosis ever indicator	Indicator of whether the participant has ever been diagnosed with pre-diabetes (impaired fasting glucose, impaired glucose tolerance)	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59707	C59707	Hypoglycemia history indicator	Indicator of whether the participant has a history of hypoglycemia	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.