CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20036	C20036	Height paternal measurement	Measurement of participant's father's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20037	C20037	Mitochondrial disease problem type	Type of problems that participant has	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20038	C20038	Mitochondrial disease eat type	Type of ways that participant eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20039	C20039	Mitochondrial disease infant formula text	The free-text field to specify the kind of infant formula used by participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20041	C20041	Mitochondrial disease liquid diet text	The free-text field to specify the type of liquid diet used by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20042	C20042	Mitochondrial disease current special diet indicator	Indicator of whether the participant is currently on a restricted/specialized diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20043	C20043	Mitochondrial disease current special diet type	Type of specialized diet of the participant currently	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20044	C20044	Mitochondrial disease current special diet type other text	The free-text field related to 'Mitochondrial disease special diet type', specifying other text. Type of specialized diet of the participant currently	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20046	C20046	Mitochondrial disease current special diet affect symptom text	The free-text field to specify whether the current specialized diet affected participant's symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20047	C20047	Mitochondrial disease prior special diet type other text	The free-text field related to 'Mitochondrial disease prior special diet type', specifying other text. Type of specialized diet the participant has been on in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20048	C20048	Mitochondrial disease vomit current prior status	Status of whether the participant's vomiting is current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20049	C20049	Mitochondrial disease current vomit onset age category	Category of the participant's age at the onset of current vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20050	C20050	Mitochondrial disease current vomit episode trigger symptom onset type	Type of triggers the participant may have had when symptoms began for the current vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20051	C20051	Mitochondrial disease current vomit episode trigger symptom onset type other text	The free-text field related to 'Mitochondrial disease current vomit episode trigger symptom onset type ', specifying other text. Type of triggers the participant may have had when symptoms began for the current vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20052	C20052	Mitochondrial disease current vomit symptom consistent indicator	Indicator of whether current vomiting symptoms are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20053	C20053	Mitochondrial disease current vomit frequency type	Type of frequency with which the participant currently has episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20054	C20054	Mitochondrial disease current vomit frequency type other text	The free-text field related to 'Mitochondrial disease current vomit frequency type', specifying other text. Type of frequency with which the participant currently has episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20055	C20055	Mitochondrial disease current vomit episode intensity type	Type of intensity of the participant's current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20056	C20056	Mitochondrial disease current vomit time of day category	Category for the time-of-day of when the participant usually vomits	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20057	C20057	Mitochondrial disease current vomit episode trigger indicator	Indicator of whether there are particular triggers that induce current vomiting episodes in participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20058	C20058	Mitochondrial disease current vomit episode trigger text	The free-text field to specify the participant's current vomiting episode triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20059	C20059	Mitochondrial disease current vomit before problem type	Types of problems that frequently occur before the participant's current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20060	C20060	Mitochondrial disease current vomit green yellow indicator	Indicator of whether the participant's vomit is green or yellow in current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20061	C20061	Mitochondrial disease current vomit green yellow frequency type	Type of frequency with which the participant's vomit is green or yellow in current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20062	C20062	Mitochondrial disease current vomit blood indicator	Indicator of whether the participant has ever vomited blood in current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.