CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2624-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2624-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2624-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2624-C56044	C56044	Headache migraine end time	The time that the subject's headache ended	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2625-C15943	C15943	Headache average days per month count	Actual number of headache days per month the participant/subject had in the past 3 months	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56047	C56047	Migraine without aura five attacks International Classification of Headache Disorders criteria B D indicator	Indicator relating to whether or not the participant/subject had at least 5 migraine attacks fulfilling criteria B-D from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56048	C56048	Migraine without aura headache attack 72 hours indicator	Indicator relating to whether or not the participant/subject had at a headache attack lasting between 4 and 72 hours that was either untreated or unsuccessfully treated	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56049	C56049	Migraine without aura headache characteristics type	Type of characteristics of the subject/participant's migraine without aura	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56050	C56050	Migraine without aura symptom during headache type	Type of symptom the patient/subject reports as having occurred during his or her headache	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56065	C56065	Migraine without aura not better accounted other International Classification of Headache Disorders diagnosis indicator	Indicator of whether the patient/subject's migraine without aura is not better accounted for using another ICHD-3 diagnosis	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56068	C56068	Migraine without aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria of being a migraine without aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56070	C56070	Migraine with aura two attacks fulfill International Classification of Headache Disorders criteria B C indicator	Indicator related to whether or not the patient/subject's has had at least two attacks that fulfill criteria B and C from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56074	C56074	Migraine with aura reversible aura symptom type	Type (at least one) of reversible aura symptom that the participant/subject has experienced during a migraine	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56084	C56084	Migraine with aura characteristic type	Type of characteristics (must choose at least two) that the patient/subject's migraines have	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56103	C56103	Migraine with aura no better International Classification of Headache Disorders diagnosis indicator	Indicator related to whether or not the patient/subject's condition might be better accounted for by another ICHD-3 diagnosis, and that transient ischaemic attack has been excluded	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56104	C56104	Migraine with aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria for being a migraine with aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56105	C56105	Chronic migraine fulfill International Classification of Headache Disorders criteria B C indicator	Indicator related to whether or not the patient/subject has headaches (tension-type-like and/or migraine) for =15 days per month for >3 months, and fulfills criteria B and C from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56110	C56110	Chronic migraine five attack fulfill International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject has had 5 attacks fulfilling criteria B-D for 1.1 Migraine without aura and/or criteria B and C for 1.2 Migraine with aura from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56112	C56112	Chronic migraine fulfill further International Classification of Headache Disorders criteria type	Type of further criteria the patient/subject's headaches fulfill, on =8 days per month for >3 months from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56132	C56132	Chronic migraine no better International Classification of Headache Disorders diagnosis indicator	Indicator of whether the subject/participant's chronic migraine diagnosis cannot be better accounted for using another ICHD-3 diagnosis	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56135	C56135	Chronic migraine meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria for chronic migraines based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2626-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16005	C16005	Headache migraine type	Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16006	C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16010	C16010	Headache migraine diagnosis indicator	Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.