CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 1122
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16058 Activity pulse grimace appearance respiration ten minute child score

Assessment of a newborn which is recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)

 Exploratory Pregnancy Outcome False Headache Headache
C16060 Weight delivery mother unit of measure

Units for the measurement of the participant's/subject's weight at the time she gave birth

 Exploratory Pregnancy Outcome False Headache Headache
C16062 Pregnancy fetal diagnostic test performed indicator

Indicates whether there were any abnormal fetal diagnostic tests performed during the pregnancy

 Exploratory Pregnancy Outcome False Headache Headache
C16063 Pregnancy fetal diagnostic test date

Date the fetal diagnostic testing was performed during the pregnancy

 Exploratory Pregnancy Outcome False Headache Headache
C16064 Pregnancy fetal diagnostic test result

Results of the fetal diagnostic testing performed during the pregnancy

 Exploratory Pregnancy Outcome False Headache Headache
C16065 Congenital anomaly child indicator

Indicates whether there were congenital anomalies in the participant's/subject's child

 Exploratory Pregnancy Outcome False Headache Headache
C16067 Newborn complication child indicator

Indicates whether there were other newborn complications experienced by the participant's/subject's child

 Exploratory Pregnancy Outcome False Headache Headache
C16069 Placenta umbilical cord abnormality indicator

Indicates whether the participant/subject experienced any abnormalities of placenta or umbilical cord

 Exploratory Pregnancy Outcome False Headache Headache
C16169 Pregnancy outcome type

Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Exploratory Pregnancy Outcome False Headache Headache
C17997 Pregnancy fetus not normal description text

Description of the abnormal pregnancy fetus

 Exploratory Pregnancy Outcome False Headache Headache
C17998 Pregnancy labor delivery complication specification text

Text about the participant/subject's experience with any complications during labor/delivery

 Exploratory Pregnancy Outcome False Headache Headache
C17999 Tocolytic agents required during preterm specification text

Text specifying the tocolytic agents the participant/subject required during preterm labor

 Exploratory Pregnancy Outcome False Headache Headache
C18000 Congenital anomalies child specification text

Text specifying any congenital anomalies of the participant/subject

 Exploratory Pregnancy Outcome False Headache Headache
C18001 Newborn complication child specification text

Text specifying other newborn complications

 Exploratory Pregnancy Outcome False Headache Headache
C18002 Placenta umbilical cord abnormality specification text

Text describing placenta or umbilical cord abnormalities

 Exploratory Pregnancy Outcome False Headache Headache
C18829 Delivery mode induced other text

The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate

 Exploratory Pregnancy Outcome False Headache Headache
C55935 Weight birth child unit of measure

Measure of the weight of the participant/subject's child at birth

 Exploratory Pregnancy Outcome False Headache Headache
C55936 Length birth child unit of measure

Measure of the length of the participant/subject's child at birth

 Exploratory Pregnancy Outcome False Headache Headache
C55937 Birth weight mother value

Value of the weight of the participant/subject at birth

 Exploratory Pregnancy Outcome False Headache Headache
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Quantitative Sensory Testing (QST) False Headache Headache
C15910 Assessment date and time

The date of participant's injury

 Supplemental Quantitative Sensory Testing (QST) False Headache Headache
C15911 Quantitative sensory testing outcome type

Type of QST outcome being measured

 Supplemental Quantitative Sensory Testing (QST) False Headache Headache
C15912 Quantitative sensory testing outcome text

Definition of the QST outcome(s) chosen

 Supplemental Quantitative Sensory Testing (QST) False Headache Headache
C15913 Quantitative sensory testing stimulation type

Type of QST stimulation

 Supplemental Quantitative Sensory Testing (QST) False Headache Headache
C15914 Quantitative sensory testing stimulation anatomic site

Body site stimulated for QST

 Supplemental Quantitative Sensory Testing (QST) False Headache Headache
Displaying 501 - 525 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.