CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12762	C12762	Electrophysiology quantitative sweat function foot measurement	The amount of sweat collected on the foot	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12763	C12763	Electrophysiology tilt study heart rate change result	Heart rate changes experienced from a tilt test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12764	C12764	Electrophysiology tilt study blood pressure change result	Blood Pressure changes experienced from a tilt test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12765	C12765	Electrophysiology short pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12766	C12766	Electrophysiology short pre-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the pre-exercise intervals	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12767	C12767	Electrophysiology short post-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the short exercise test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12768	C12768	Electrophysiology short post-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the post-exercise intervals	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12769	C12769	Electrophysiology long pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12770	C12770	Electrophysiology long pre-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded pre- long exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12771	C12771	Electrophysiology long exercise test post-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise for the long exercise test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C12772	C12772	Electrophysiology long exercise test post-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded post- long exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C17969	C17969	Electrophysiology sensory nerve segment name	The name of the segment used in sensory nerve conduction studies	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C18808	C18808	Electrophysiology motor unit number estimation method used other text	The free-text field related to 'Electrophysiology motor unit number estimation method used type' specifying other text. Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C18809	C18809	Electrophysiology motor unit number estimation nerve other text	The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1062-C18871	C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	General (For all diseases)	General (For all diseases)
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	General (For all diseases)	General (For all diseases)
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	General (For all diseases)	General (For all diseases)
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	General (For all diseases)	General (For all diseases)
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	General (For all diseases)	General (For all diseases)
F2059-C20544	C20544	Quality of Life in Neurological Disorders (Neuro-Qol) - Exhaustion fatigue assessment past week scale	The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F2059-C20546	C20546	Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale	The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F2059-C20547	C20547	Quality of Life in Neurological Disorders (Neuro-Qol) - Fatigue assessment past week scale	The scale representing how often the participant felt fatigued in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F2059-C20548	C20548	Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale	The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.