CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 576 - 600 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1126-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02309	C02309	Serious adverse event indicator	The indicator of whether the adverse event is serious.	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02310	C02310	Adverse event CTCAE low level term name	Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02311	C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C14272	C14272	Adverse event AED action taken text	Text of action taken with the anti-epileptic drug (AED) due to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C18659	C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1143-C10478	C10478	Learning disability diagnosis type	Type of learning disability with which the participant/subject was diagnosed	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C10479	C10479	School special accommodation indicator	Whether the participant/subject ever received special accommodations for school coursework	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14115	C14115	Family history sinistrality indicator	Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14116	C14116	Learning disability or attention deficit diagnosis indicator	Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14118	C14118	Disability application status	People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14119	C14119	Psychological/neuropsychological previous testing indicator	Whether previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14120	C14120	Psychological/neuropsychological previous testing age value	Age at which previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14121	C14121	Language laterality indicator	Presence or absence of established localization for language skills as indicated by fMRI or Wada	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14122	C14122	Language laterality result	Result of language laterality testing by fMRI or Wada to identify localization of language skills	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C18801	C18801	Learning disability diagnosis other text	The free-text field related to 'Learning disability diagnosis type' specifying other text. Type of learning disability with which the participant/subject was diagnosed	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1144-C10626	C10626	Condition diary date and time	Date (and time, if applicable and known) the diary data are recorded	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1144-C10635	C10635	Seizure daily diary seizure type	Type of seizure experienced by the participant/subject on the specific date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1144-C14136	C14136	Seizure daily diary no seizure indicator	The indicator of whether the participant/subject experienced NO seizures on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1144-C14138	C14138	Seizure daily diary seizure type count	The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1144-C14139	C14139	Seizure diary completer type	The type of person recording the diary data	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.