CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1823-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C17396	C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C18751	C18751	Sex participant or subject genotype other text	The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C19518	C19518	Country of origin name	Name of patient/participant's country of origin	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C10972	C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C10974	C10974	Manual muscle testing muscle score	The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C18816	C18816	Manual muscle testing position other text	The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C10814	C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C16146	C16146	Family history relative age at death value	Age at death of the participant/subject's relative, if applicable	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19655	C19655	Family history CMD LGMD disorder indicator	Indicator for whether the participant/subject has a family history of CMD to LGMD spectrum disorder	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19656	C19656	Family history living relative status	Status of life of the participant/subject's relative with the family history of a specific condition	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19657	C19657	Family history birth year text	Free-text field to indicate the year of birth of the participant/subject's relative with the family history of a specific condition	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19659	C19659	Family history side type	Free-text field to indicate the side of the family in which the participant/subject has a family history of the listed conditions	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19663	C19663	Family history relationship type	Field where participant/subject can indicate which family member(s) has a history of the listed conditions	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.