CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 56251 - 56275 of 57130

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3123-C20002	C20002	ECG right bundle branch block status	Status of patterns of right bundle branch block on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60344	C60344	Wearable exercise technology indicator	Indicator of whether the participant uses wearable exercise technology	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60345	C60345	Wearable exercise technology type	Type of wearable exercise technology the participant uses	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60346	C60346	Wearable exercise technology recording duration	Duration in days of the wearable exercise technology recording	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60347	C60347	Step average daily count	Count of the average number of steps taken by the participant daily	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60348	C60348	Vigorous activity average duration	Duration of average time the participant spent in vigorous activity	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60349	C60349	Sedentary average daily duration	Duration of average time the participant was sedentary daily	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60350	C60350	Sleep total average duration	Duration of total average sleep during the recording period	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60351	C60351	Sleep stage 4 average duration	Duration of average time in sleep stage 4 during the recording period	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60352	C60352	Sleep efficiency score	Score for the participant's sleep efficiency calculated by wearable technology software algorithm	Exploratory	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Core	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C06246	C06246	Medical history condition type	Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C16012	C16012	Medical history condition diagnosis indicator	Indicator of whether the participant has been diagnosed with the medical condition/disease	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C18793	C18793	Medical history condition other text	The free-text field related to 'Medical history condition type', specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C58374	C58374	Other surgery performed text	Free-text field to specify other surgery(ies) performed on participant	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C59776	C59776	Allergy text	Free-text field to specify the participant's allergies	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59777	C59777	Otoscopy anatomic site	Anatomic site of the otoscopy	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59778	C59778	Otoscopy result status	Status of otoscopy result	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59779	C59779	Otoscopy cannot assess text	Free-text field explaining why an anatomic site could not be assessed by otoscopy	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59780	C59780	Otoscopy pre-auricular region abnormal type	Type of abnormal otoscopy finding for the pre-auricular region	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59781	C59781	Otoscopy pre-auricular region abnormal type other text	The free-text field related to 'Otoscopy pre-auricular region abnormal type', specifying other text. Type of abnormal otoscopy finding for the pre-auricular region	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 56251 - 56275 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.