Report Viewer

NINDS CDE Notice of Copyright
PROMIS v2.0 - Ability to Participate in Social Roles and Activities
Please visit this website for more information about the instrument: PROMIS website
NeuroRehab Supplemental - Highly Recommended
Recommendations for Use: Indicated for studies requiring a measure of participation. Intended for use in community settings since participation takes place in the community.
Short Description of Instrument
The Patient Reported Outcomes Measurement Information System (PROMIS) contains item response theory (IRT) based instruments with calibrated item banks that incorporate Likert style items for approximately 70 domains. It is part of the NIH goal to develop systems to support NIH-funded research supported by all its institutes and centers. PROMIS measures cover physical, mental, and social health and can be used across chronic conditions.
The PROMIS adult Ability to Participate in Social Roles and Activities item bank and short forms (4a, 6a, 8a) assess the perceived ability to perform one's usual social roles and activities. Items are worded negatively in terms of perceived limitations, but responses are reverse-coded so that higher scores represent fewer limitations (better abilities). The item bank does not use a time frame (e.g., over the past seven days) when assessing ability to participate in social roles and activities.
Administration:  There are two administration options for assessing Ability to Participate in Social Roles and Activities: short forms (4a, 6a, 8a) and computerized adaptive test (CAT). With CAT, participant responses guide the system's choice of subsequent items from the full item bank (35 items in total). Although items differ across respondents taking CAT, scores are comparable across participants and over time. PROMIS measures can be administered in three ways: on paper (short forms and profiles only); by computer; with an app.
Time: For CAT version, variable but design based on item-response theory algorithms to minimize time. For short forms, the administration time is 1-3 minutes.
Ages: Adult (ages 18+)
Cost: No licensing or royalty fees for English and Spanish PROMIS measures used in individual research, clinical practice, educational assessment, or other application. Translations in other languages are subject to a distribution fee. Permission is required for commercial use or integration into proprietary technology; see PROMIS Terms and Conditions of Use for details.
Comments/Special Instructions
NeuroRehab Specific: The PROMIS Ability to Participate in Social Roles and Activities item bank and short forms (4a, 6a, 8a) are self-reported measures of participation.
Scoring and Psychometric Properties
Scoring: T scores for all scales.
Psychometric Properties: Substantial qualitative and quantitative evidence has been gathered that supports the validity of PROMIS measures. More information about validation is available at: PROMIS Validation
Strengths: PROMIS Ability to Participate in Social Roles and Activities Short Forms (4a, 6a, 8a) are brief, yet reliable.
Weaknesses: Coverage of all aspects of participation is not comprehensive.  Use of the item bank requires CAT software.
Hahn EA, DeWalt DA, Bode RK, Garcia SF, DeVellis RF, Correia H, Cella D, PROMIS Cooperative Group. New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychol. 2014 May;33(5):490-499.
Hahn EA, Kallen MA, Jensen RE, Potosky AL, Moinpour CM, Ramirez M, Cella D, Teresi JA. Measuring social function in diverse cancer populations: Evaluation of measurement equivalence of the Patient Reported Outcomes Measurement Information System® (PROMIS®) Ability to Participate in Social Roles and Activities short form. Psychol Test Assess Model. 2016 Jun 27;58(2):403-421.
Tamminga SJ, van Vree FM, Volker G, Roorda LD, Terwee CB, Goossens PH, Vliet Vlieland, TPM. Changes in the ability to participate in and satisfaction with social roles and activities in patients in outpatient rehabilitation. J Patient Rep Outcomes. 2020 4(1):73.
van Leeuwen LM, Tamminga SJ, Ravinskaya M, de Wind A, Hahn EA, Terwee CB, Beckerman H, Boezeman EJ, Hoving JL, Huysmans MA, Nieuwenhuijsen K, de Boer AGEM, van der Beek AJ. Proposal to extend the PROMIS® item bank v2.0 'Ability to Participate in Social Roles and Activities': item generation and content validity. Qual Life Res. 2020 Oct;29(10):2851-2861.
Document last updated January 2022