CDE Detailed Report

Disease: content
Subdomain Name: The International SCI Data Sets
CRF: welcome

Displaying 1 - 31 of 31
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C06198 Perianal problem type PerianlProbTyp Type of problem with the anus found in the perianal space Type of problem with the anus found in the perianal space Yes Hemorrhoids;Perianal sores;Fissures;Other, specify;Unknown Hemorrhoids;Perianal sores;Fissures;Other, specify;Unknown Alphanumeric

For each perianal problem indicate if it was experienced. Perianal problems may change with time and only those present within the last year should be noted.
Included in calculating total NBD score

Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Multiple Pre-Defined Values Selected

C21669 Surgical therapeutic procedure ICD-10-CM other text SurgTherapuProcICD10CMOthTxt The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure Other, specify Alphanumeric

If the data will be shared, code the surgical procedure using ICD-10-CM

International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for permissible values: http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016 Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 4000

Free-Form Entry

C06005 Data collected date and time DataCollDateTime Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performe Date Performed Date or Date & Time

Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).

Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-24 21:00:23.88 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

C06199 Perianal problem experienced last year indicator PerianlProbExpLastYrInd Indicator of whether the perianal problem was experienced within the last year Indicator of whether the perianal problem was experienced within the last year Perianal problems Yes;No Yes;No Alphanumeric

Choose one. For each perianal problem indicate if it was experienced within the last four weeks.
Included in calculating total NBD score.

Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C53029 Defecation uneasiness headache perspiration past four week indicator DefctnUneasHeadaPersPstFrMoInd The indicator related to uneasiness, headache or perspiration during defecation The indicator related to uneasiness, headache or perspiration during defecatio Uneasiness, headache or perspiration during defecation No;Yes;Unknown No;Yes;Unknown Alphanumeric

within the last four weeks
Included in calculating total NBD score.

Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4. Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C06025 Surgical or therapeutic procedure performed indicator SurgTherProcedurPerfInd Indicator whether the participant/subject has undergone the selected surgical procedure Indicator whether the participant/subject has undergone the selected surgical procedure Surgical procedures on the gastrointestinal tract Yes;No;Unknown Yes;No;Unknown Alphanumeric

For each type of surgical procedure on the gastrointestinal tract indicate if it was ever performed

Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C18765 Surgical or therapeutic procedure other text SurgTherapProcedurOTH The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject Other, specify Alphanumeric

For each type of surgical procedure on the gastrointestinal tract indicate if it was performed

Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 4000

Free-Form Entry

C53031 Digital rectal stimulation evacuation anorectum past four week average frequency DgtlRecStimEvAnorPstFrWkAvFreq The indicator related to digital rectal stimulation or evacuation of the anorectum The indicator related to digital rectal stimulation or evacuation of the anorectum Digital stimulation or evacuation of the anorectum Daily;Never;Unknown;Once or more per week;Less than once per week Daily;Never;Unknown;Once or more per week;Less than once per week Alphanumeric

within the last four weeks
Included in calculating total NBD score.

Adult;Pediatric Supplemental 1.00 2017-02-03 11:12:48.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C06173 Gastrointestinal anal sphincter dysfunction unrelate SCI indicator GasAnlSphDysfncUnrelSClInd Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SC Gastrointestinal or anal sphincter dysfunction unrelated to the spinal cord lesion Yes, specify;No;Unknown Yes, specify;No;Unknown Alphanumeric

Choose one

Jones R, Lydeard S. Irritable bowel syndrome in the general population. Br Med J 1992; 304: 87-90. <br />Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C18785 Gastrointestinal anal sphincter dysfunction unrelate SCI specify text GasAnlSphDysfncUnrelSClST The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SC Yes, specify Alphanumeric Jones R, Lydeard S. Irritable bowel syndrome in the general population. Br Med J 1992; 304: 87-90. <br />Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 255

Free-Form Entry

C53037 Fecal incontinence past four week average frequency FclInctPstFourMoAveFreq Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stools Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stool Frequency of fecal incontinence Less than once per month;Never;Not applicable;Unknown;Daily;1-6 times per week;1-4 times every month Less than once per month;Never;Not applicable;Unknown;Daily;1-6 times per week;1-4 times every month Alphanumeric

within the last four weeks
Included in calculating total NBD score.

Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C06187 Defecation method bowel care procedure used past four week main type DefctnMthdBwlProcedUseMainTyp Type of main defecation method and bowel care procedures used within the last four weeks Type of main defecation method and bowel care procedures used within the last four week Main Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation;Mini enema;Enema;Colostomy;Sacral anterior root stimulation;Other, specify;Unknown Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation;Mini enema (Clysma = 150 mL);Enema (> 150 mL);Colostomy;Sacral anterior root stimulation;Other method, specify;Unknown Alphanumeric

Choose one main method

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C18786 Defecation method bowel care procedure used past four week main other text DefctnMthdBwlProcedUseMainOTH The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four week Other method, specify Alphanumeric Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 4000

Free-Form Entry

C53041 Flatus incontinence indicator FltsIncntncInd The indicator related to flatus incontinence within the last four weeks The indicator related to flatus incontinence within the last four weeks Flatus incontinence No;Yes;Not applicable;Unknown No;Yes;Not applicable;Unknown Alphanumeric

within the last four weeks
Included in calculating total NBD score.

Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C06188 Defecation method bowel care procedure used past four week supplementary type DefctnMthdBwlProcedUseSuppTyp Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every wee Supplementary Sacral anterior root stimulation;Other, specify;Unknown;Enema;Mini enema;Not applicable;Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation Sacral anterior root stimulation;Other method, specify;Unknown;Enema (> 150 mL);Mini enema (Clysma = 150 mL);Not applicable;Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation Alphanumeric

Choose all that apply as more than one supplementary method can be used

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Multiple Pre-Defined Values Selected

C18787 Defecation method bowel care procedure used past four week supplementary other text DefctnMthdBwlProcedUseSuppOTH The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every wee Other, specify Alphanumeric Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 4000

Free-Form Entry

C53047 Oral laxative tablet capsule granulate type OrlLaxTabCapsGrnlTyp Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipatio Yes, tablets, capsules or granulates Bulking/osmotic;Irritant;Prokinetics/chloride channel activators;Other, specify Bulking/osmotic;Irritant;Prokinetics/chloride channel activators;Other, specify Alphanumeric

Used in calculating total NBD score

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Multiple Pre-Defined Values Selected

C06190 Defecation past four week average duration range DefctnPstFourWkAvgDurRang Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc Range for the average time required for each defecation within the last four weeks Average time required for defecation within the last four weeks 31-60 minutes;More than 60 minutes;Not applicable;Unknown;0-30 minutes 31-60 minutes;More than 60 minutes;Not applicable;Unknown;0-30 minutes Alphanumeric

Choose one. Included in calculating total NBD score.

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Krogh K, Christensen P, Sabroe S, Laurberg S. Neurogenic bowel dysfunction score. Spinal Cord 2006; 44: 62 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C18790 Perianal problem other text PerianlProbOTH The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space Other, specify Alphanumeric

For each perianal problem indicate if it was experienced. Perianal problems may change with time and only those present within the last year should be noted.

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 4000

Free-Form Entry

C53074 Abdominal pain discomfort last four week average frequency AbdmnlPainDiscfrtLstFrWkAvFreq The average frequency of abdominal pain/discomfort within the last four weeks The average frequency of abdominal pain/discomfort within the last four week Abdominal pain or discomfort Daily;Never;Unknown;1-6 times per week;Once per week or less Daily;Never;Unknown;1-6 times per week;Once per week or less Alphanumeric

within the last four weeks

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C06191 Defecation past four week average frequency DefctnPstFourWkAvgDurFreq Average frequency of defecation within the last four weeks Average frequency of defecation within the last four week Frequency of defecation within the last four weeks Unknown;Daily;2-6 times per week;Once every week or less Unknown;Daily;2-6 times per week;Once every week or less Alphanumeric

Choose one. This element does not distinguish between spontaneous or assisted defecation. Not applicable can be used i.e. in subjects with ileo- or colostomy. Included in calculating total NBD score.

Drossman DA, Sandler RS, McKee DC, Lovitz AJ. Bowel patterns among subjects not seeking health care. Gastroenterology 1982; 83: 529-534. Krogh K, Christensen P, Sabroe S, Laurberg S. Neurogenic bowel dysfunction score. Spinal Cord 2006; 44: 625. Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4. Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19188 Oral laxative medication indicator OralLaxativeMedicationInd Indicator for oral laxative medication use (within the last four weeks) Indicator for oral laxative medication use (within the last four weeks) Oral laxatives No;Yes;Unknown No;Yes;Unknown Alphanumeric

Within the last four weeks
Included in calculating total NBD score.

Adult;Pediatric Supplemental 1.00 2014-06-02 11:39:57.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C53075 Neurogenic bowel dysfunction total score NBDTotalScore The total score for Neurogenic Bowel Dysfunction used for assessment of bowel symptoms in individuals with SCI The total score for Neurogenic Bowel Dysfunction used for assessment of bowel symptoms in individuals with SCI Total NBD score Numeric Values

0-6: Very minor
7-9: Minor
10-13: Moderate
14 or more: Severe neurogenic bowel dysfunction

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult Supplemental 1.00 2017-02-03 15:29:42.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Free-Form Entry

0 45
C06193 Diaper pad plug use past four week indicator DiapPadPlugPstFourWkInd Indicator for need to wear a diaper, pad or plug within the last four weeks Indicator for need to wear a diaper, pad or plug within the last four weeks Need to wear diaper, pad or plug No;Yes;Unknown No;Yes;Unknown Alphanumeric

Within the last four weeks, choose one. The need to wear a pad only for urinary incontinence should not be included.

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19189 Oral laxative tablets capsules granulates other text OralLaxTabCapGrnlOTH The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other text The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other tex Other, specify Alphanumeric Adult;Pediatric Supplemental 1.00 2014-06-02 13:19:50.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 4000

Free-Form Entry

C06195 Constipating agent fecal incontinence drug last four week indicator ConAgFeclInconLstFourWkInd Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks Constipating agents/drugs against fecal incontinence Yes;No;Unknown Yes;No;Unknown Alphanumeric

For each medication type indicate if it was used within the last four weeks
Included in calculating total NBD score.

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Single Pre-Defined Value Selected

C19247 Subject ID SubIDNam Subject identification ID Subject identification ID Subject Alphanumeric

The participant or subject identifiers or IDs should be assigned by the study.

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 1.00 2014-06-05 13:10:49.0 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 255

Free-Form Entry

C05108 Surgical or therapeutic procedure type SurgTherapProcedurTyp Type of surgical or therapeutic procedure received by the participant/subject Type of surgical or therapeutic procedure received by the participant/subject Surgical procedures on the gastrointestinal tract Appendicectomy;Cholecystectomy;Colostomy;Ileostomy;Feeding tube placement;Fundoplication;Scoliosis surgery;Tendon release;Tympanostomy tubes;Tracheostomy;Airway surgery;Other surgery, specify;Unknown;Diagnostic;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transection;Radiosurgery;Therapeutic brain stimulation;Other, specify;Appendicostomy;Appendectomy;Neurological surgery;Bony orthopedic surgery Appendicectomy;Cholecystectomy;Colostomy;Ileostomy;Feeding tube placement;Fundoplication;Scoliosis surgery;Tendon release;Tympanostomy tubes;Tracheostomy;Airway surgery;Other surgery, specify;Unknown;Diagnostic surgery;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transection;Radiosurgery;Therapeutic brain stimulation;Other, specify;Appendicostomy (antegrade colonic anema);Appendectomy;Neurological surgery;Bony orthopedic surgery Alphanumeric

For each type of surgical procedure on the gastrointestinal tract indicate if it was performed

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Multiple Pre-Defined Values Selected

C06196 Oral laxative drops liquid type OrlLaxDropsLiquidTyp Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four weeks Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four week Yes, drops or liquids Bulking/osmotic;Irritant Bulking/osmotic;Irritant Alphanumeric

Used in calculating total NBD score

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Multiple Pre-Defined Values Selected

C21668 ICD-10-CM code SurgTherapuProcICD10CMCode Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure Surgical procedures on the gastrointestinal tract MB;C;T;S;G;Other, specify Muscle biopsy;Contracture Release;Tracheostomy;Scoliosis;Gastrostomy;Other specify Alphanumeric

If the data will be shared, code the surgical procedure using ICD-10-CM

http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016 Adult;Pediatric Supplemental 1.00 2013-08-28 16:08:00.453 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets

Multiple Pre-Defined Values Selected

C06000 Site identifier number SiteIDNum Unique identification number given to the study site to distinguish the location where data is recorded Unique identification number given to the study site to distinguish the location where data is recorde Site Alphanumeric

The site identifiers or IDs should be assigned by the study.

Krogh K, Perkash I, Stiens SA, Biering-S&Oslash;rensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Adult;Pediatric Supplemental 3.00 2013-07-17 09:26:36.973 International SCI Bowel Function Basic Data Set Version 2.0 The International SCI Data Sets The International SCI Data Sets 255

Free-Form Entry

CSV