CDE Detailed Report

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Displaying 1 - 20 of 20
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21143 Quality of Life - Movement button shirt ability scale QolMoveButtonShirtAblityScl The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremit Are you able to button your shirt? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21133 Quality of Life - Movement body wash dry ability scale QoLMoveBodyWashDryAblityScl The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremit Are you able to wash and dry your body? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21144 Quality of Life - Movement fingernail trim ability scale QolMoveFingernlTrimAbiltyScl The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit Are you able to trim your fingernails? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21134 Quality of Life - Movement shampoo hair ability scale QoLMoveShampooHairAbilityScl The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit Are you able to shampoo your hair? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21145 Quality of Life - Movement toenail trim ability scale QolMoveToenailTrimAbiltyScl The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremit Are you able to cut your toe nails? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21135 Quality of Life - Movement spoon eat meal difficulty scale QolMoveSpoonEatMealAbilityScl The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremit How much DIFFICULTY do you currently have using a spoon to eat a meal? 5;4;3;2;1 No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21146 Quality of Life - Movement bend down pick up cloth ability scale QoLMoveBndDwnPckUpClthAbltyScl The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremit Are you able to bend down and pick up clothing from the floor? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21136 Quality of Life - Movement dress pullover shirt on difficulty scale QolMoveDrssPllvrShrtAblityScl The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremit How much DIFFICULTY do you currently have putting on a pullover shirt? 5;4;3;2;1 No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21137 Quality of Life - Movement dress pullover shirt off difficulty scale QoLMoveDrssPllovrOffAbilityScl The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremit How much DIFFICULTY do you currently have taking off a pullover shirt? 5;4;3;2;1 No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21127 Quality of Life - Movement turn key lock ability scale QoLMoveTurnKeyLockAbilityScl The scale which represents the extent to which the participant was able to turn a key in a lock, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to turn a key in a lock, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremit Are you able to turn a key in a lock? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21138 Quality of Life - Movement small object remove wrap difficulty scale QoLMoveSmllObjtRmvWrpAblityScl The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremit How much DIFFICULTY do you currently have removing wrappings from small objects. 5;4;3;2;1 No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21128 Quality of Life - Movement brush teeth ability scale QoLMoveBrushTeethAblityScl The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit Are you able to brush your teeth? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21139 Quality of Life - Movement medication open difficulty scale QolMoveMedicatnOpnAbiltyScl The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremit How much DIFFICULTY do you currently have opening medications or vitamin containers (e.g., childproof containers, small bottles)? 5;4;3;2;1 No Difficulty;A Little Difficulty;Some Difficulty;A Lot of Difficulty;Can't Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21129 Quality of Life - Movement touch-tone phone call ability scale QolMoveTouchTneCallAbilityScl The scale which represents the extent to which the participant was able to make a phone call using a touch tone key-pad, as part of Neuro-QOL Upper Extremity The scale which represents the extent to which the participant was able to make a phone call using a touch tone key-pad, as part of Neuro-QOL Upper Extremit Are you able to make a phone call using a touch tone key-pad? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21140 Quality of Life - Movement open prior open jar ability scale QolMoveOpnPriorOpnJarAbltyScl The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremit Are you able to open previously opened jars? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21130 Quality of Life - Movement pick up coin ability scale QoLMovePckUpCoinAbltyScl The scale which represents the extent to which the participant was able to pick up coins from a table top, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to pick up coins from a table top, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremit Are you able to pick up coins from a table top? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21141 Quality of Life - Movement full food plate hold ability scale QolMoveFulFoodPlatHldAbltyScl The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremit Are you able to hold a plate full of food? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21131 Quality of Life - Movement pen pencil write ability scale QolMovePenPenclWrteAbilityScl The scale which represents the extent to which the participant was able to write with a pen or pencil, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) The scale which represents the extent to which the participant was able to write with a pen or pencil, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS Are you able to write with a pen or pencil? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21142 Quality of Life - Movement pull trouser on ability scale QolMovePullTrouserOnAbiltyScl The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremit Are you able to pull on trousers? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21132 Quality of Life - Movement zipper open close ability scale QoLMoveZipprOpnClseAblityScl The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremity The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremit Are you able to open and close a zipper? 5;4;3;2;1 Without any Difficulty;With a Little Difficulty;With Some Difficulty;With Much Difficulty;Unable to Do Numeric Values

Part of Neuro-QOL Adult Bank - Upper Extremity

Adult;Pediatric Supplemental 1.00 2015-07-15 15:16:35.0 Neuro-QOL Adult Bank - Upper Extremity NIH Resources NIH Resources

Single Pre-Defined Value Selected

CSV