CDE Detailed Report

Disease: Multiple Sclerosis
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54)

Displaying 1 - 50 of 55
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C14740 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - walking greater than one mile scale MSQOLWlkGrtrOneMileScale The scale related to health limit walk one mile based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to health limit walk one mile based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) Does your health limit you in walking more than one mile? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14772 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - health worry variety scale MSQOLHlthWorryVrtyScale The scale related to proportion of time feeling encumbered by health problems based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling encumbered by health problems based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much during the past 4 weeks did you feel weighed down by your health problems? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14751 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - relationship interference scale MSQOLRelateIntrfrnceScale The scale related to limited normal social activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to limited normal social activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with family, friends, neighbors, or groups? 1;2;3;4;5 Not at all;Slightly;Moderately;Quite a bit;Extremely Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14783 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - bowel problem scale MSQOLBowelProbScale The scale related to a problem with bowel or bladder function from the Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to a problem with bowel or bladder function from the Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, to what extent have problems with your bowel or bladder function interfered with your normal social activities with family, friends, neighbors, or groups? 1;2;3;4;5 Not at all;Slightly;Moderately;Quite a bit;Extremely Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14762 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - fatigue variety scale MSQOLFtgeVrtyScale The scale related to proportion of time feeling tired or sleepy based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling tired or sleepy based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks did you feel tired? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14741 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - walking blocks scale MSQOLWlkgBlocksScale The scale related to health limit walking blocks based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to health limit walking blocks based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) Does your health limit you in walking several blocks? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14773 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - concentration scale MSQOLConcentrationScale The scale related to proportion of time having difficulty concentrating based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time having difficulty concentrating based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much during the past 4 weeks have you had difficulty concentrating and thinking? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14752 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - body pain scale MSQOLBodyPainScale The scale related to limited activity due to pain based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to limited activity due to pain based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much bodily pain have you had during the past 4 weeks? 1;2;3;4;5;6 None;Very mild;Mild;Moderate;Severe;Very severe Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14784 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - pain interference scale MSQOLPainInterfScale The scale related to pain interference from the Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to pain interference from the Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, how much did pain interfere with your enjoyment of life? 1;2;3;4;5 Not at all;Slightly;Moderately;Quite a bit;Extremely Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14763 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - awake scale MSQOLAwkeScale The scale related to proportion of time feeling rested after sleep based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling rested after sleep based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks did you feel rested on waking in the morning? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14742 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - walking one block scale MSQOLWlkgOneBlockScale The scale related to health limit walk one block based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to health limit walk one block based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) Does your health limit you in walking one block? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14774 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - attention scale MSQOLAttScale The scale related to attention based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to attention based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How much during the past 4 weeks did you have trouble keeping your attention on an activity for long? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14753 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - body pain work interference scale MSQOLBodyPainWrkInterfrnceScl The scale related to limited work due to pain based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to limited work due to pain based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? 1;3;4;5;2 Not at all;Moderately;Quite a bit;Extremely;A little bit Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14785 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - overall QOL scale MSQOLOvrlQOLScale The scale related to overall QOL from Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to overall QOL from Multiple Sclerosis Quality of Life Scale (MSQOL-54). Overall, how would you rate your own quality-of-life? 10;9;8;7;6;5;4;3;2;1;0 best possible quality of life;;;;;;;;;;worst possible quality of life, as bad as or worse than being dead Alphanumeric

Use the following scale where 10 = best possible quality of life and 0 = worst possible quality of life, as bad as or worse than being dead.

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14732 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - general scale MSQOLGenScale The description self-reported by the participant/subject to indicated their overall quality of health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The self-reported level or quality of general health In general, would you say your health is 1;2;3;4;5 Excellent;Very good;Good;Fair;Poor Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14764 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - social interference scale MSQOLSocInterferenceScale The scale related to proportion of time that health interfered with social activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to proportion of time that health interfered with social activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.) 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14743 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - dressing self scale MSQOLDrsngSelfScale The scale related to dressing self based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to dressing self based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Does your health limit you in bathing and dressing yourself? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14775 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - memory scale MSQOLMemoryScale The scale related to proportion of time having memory difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time having memory difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much during the past 4 weeks have you had trouble with your memory? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14754 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - high energy scale MSQOLHighEnrgyScale The scale related to proportion of high energy or activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of high energy or activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks did you feel full of pep? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14786 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - overall life satisfaction scale MSQOLOverLifeSatisfScale The description self-reported by the participant/subject about how life feels as a whole based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How the participant/subject best describes his or her feeling about life as a whole Which best describes how you feel about your life as a whole? 1;2;3;4;5;6;7 terrible;unhappy;mostly dissatisfied;mixed - about equally satisfied and dissatisfied;mostly satisfied;pleased;delighted Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14733 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - year comparison scale MSQOLYrCompScale The scale comparison of one year ago the rate of health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale comparison of one year ago the rate of health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) Compared to one year ago, how would you rate your health in general now 1;2;3;4;5 Much better now than one year ago;Somewhat better now than one year ago;About the same;somewhat worse than one year ago;Much worse now than one year ago Numeric values

Circle one number

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14765 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - unhealthy scale MSQOLUnhealthyScale The scale related to unhealthiness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to unhealthiness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) I seem to get sick a little easier than other people 1;2;3;4;5 Definitely true;Mostly true;not sure;Mostly false;Definitely false Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14744 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - decrease work physical indicator MSQOLDecWorkPhysInd The scale related to decreased work or daily activities based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to decreased work or daily activities based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as are result of your physical health - cut down on the amount of time you could spend on work or other activities? 1;2 Yes;No Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14776 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - family scale MSQOLFmlyScale The scale related to proportion of time family noticed memory or concentration difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time family noticed memory or concentration difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much during the past 4 weeks have others, such as family members or friends, noticed that you have trouble with your memory or problems with your concentration? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14755 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - nervousness scale MSQOLNervScale The scale related to proportion of nervousness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of nervousness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks have you been a very nervous person? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14734 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - vigorous activity scale MSQOLVigrsActvtyScale The scale related to health limit in vigorous activities based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to health limit in vigorous activities based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) Does your health limit you in vigorous activities, such as running, lifting heavy objects, participating in strenuous sports? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14766 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - healthy scale MSQOLHlthyScale The description self-reported by the participant/subject to indicate whether they agree that their overall health is comparable to others based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Whether the participant/subject reports that their health is comparable to others they know I am as healthy as anybody I know 1;2;3;4;5 Definitely true;Mostly true;not sure;Mostly false;Definitely false Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14745 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - decrease achievement physical indicator MSQOLDecAchvmntPhysInd The scale related to decreased achievement based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to decreased achievement based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as are result of your physical health - accomplished less than you would like? 1;2 Yes;No Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14777 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - sexual interest scale MSQOlSxlInterestMaleScale The scale related to lack of sexual interest based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to lack of sexual interest based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How much of a problem was each of the following for you during the past 4 weeks: lack of sexual interest? 1;2;3;4 not a problem;a little of a problem;somewhat of a problem;very much a problem Numeric values

To be answered by men and women

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14756 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - depression scale MSQOLDepScale The scale related to proportion of time feeling depressed based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling depressed based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks have you felt so down in the dumps that nothing could cheer you up? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14735 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - moderate activity scale MSQOLModrtActvtyScale The scale for moderate activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale for moderate activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Does your health limit you in moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14767 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - health decline scale MSQOLHlthDecScale The description self-reported by the participant/subject to indicate whether they agree that their health is expected to get worse based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Whether the participant/subject reports the expectation for their health to get worse I expect my health to get worse 1;2;3;4;5 Definitely true;Mostly true;not sure;Mostly false;Definitely false Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14746 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - limit activity indicator MSQOLLimActInd The scale related to limited activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to limited activity based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as are result of your physical health - were limited in the kind of work or other activities? 1;2 Yes;No Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14778 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - male sexual function scale MSQOLMaleSxlFunctScale The scale related to male sexual organ function based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to male sexual organ function based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How much of a problem was each of the following for you during the past 4 weeks: difficulty getting or keeping an erection? 1;2;3;4 not a problem;a little of a problem;somewhat of a problem;very much a problem Numeric values

To be answered by men only

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14757 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - calm scale MSQOLClmScale The scale related to proportion of time feeling calm based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling calm based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks have you felt calm and peaceful? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14736 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - lifting scale MSQOLLftngScale The scale related to lifting based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to lifting based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Does your health limit you lifting or carrying groceries? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14768 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - excellent health scale MSQOLExcellentHlthScale The description self-reported by the participant/subject to indicate whether they agree that their overall health is excellent based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Whether the participant/subject reports that their health is excellent My health is excellent 1;2;3;4;5 Definitely true;Mostly true;not sure;Mostly false;Definitely false Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14747 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - difficult perform work physical indicator MSQOLDiffcltPerfWrkPhysInd The scale related to difficult perform work based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to difficult perform work based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as are result of your physical health - had difficulty performing the work or other activities (for example, it took extra effort)? 1;2 Yes;No Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14779 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - female sexual function scale MSQOLFemaleSxlFunctScale The scale related to female sexual function based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to female sexual function based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How much of a problem was each of the following for you during the past 4 weeks: inadequate lubrication? 1;2;3;4 not a problem;a little of a problem;somewhat of a problem;very much a problem Numeric values

To be answered by women only

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14758 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - energy scale MSQOLEnrgyScale The scale related to proportion of time feeling high energy based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling high energy based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks did you have a lot of energy? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14737 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - long stair climb scale MSQOLLngStairClimbScale The scale related to long stair climbs based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to long stair climbs based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Does your health limit you in climbing several flights of stairs? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14769 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - discourage health problem scale MSQOLDiscourageHlthScale The scale related to proportion of time feeling discouraged by health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling discouraged by health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much during the past 4 weeks were you discouraged by your health problems? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14748 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - decrease work emotional indicator MSQOLDecWrkEmtlInd The scale related to problems with work or daily activities from emotional, anxious or depressed feelings based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to problems with work or daily activities from emotional, anxious or depressed feelings based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emotional problems (such as feeling depressed or anxious) - cut down on the amount of time you could spend on work or other activities? 1;2 Yes;No Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14780 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - orgasm scale MSQOLOrgasmScale The scale related to orgasm difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to orgasm difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How much of a problem was each of the following for you during the past 4 weeks: difficulty having orgasm? 1;2;3;4 not a problem;a little of a problem;somewhat of a problem;very much a problem Numeric values

To be answered by men and women

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14759 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - depression variety scale MSQOLDeprsnVrtyScale The scale related to proportion of time feeling depressed sadness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling depressed sadness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks have you felt downhearted and blue? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14738 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - short stair climb scale MSQOLShrtStairClimbScale The scale related to short stair climbs based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to short stair climbs based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). Does your health limit you in climbing one flight of stairs? If so, how much? 1;2;3 Yes, limited a lot;Yes, limited a little;No, not limited at all Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14770 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - frustration scale MSQOLFrustrationScale The scale related to proportion of time feeling frustrated by health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling frustrated by health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much during the past 4 weeks were you frustrated about your health? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14749 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - decrease achievement emotional indicator MSQOLDecAchvmntInd The indicator related to decrease achievement emotion based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The indicator related to decrease achievement emotion based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emotional problems (such as feeling depressed or anxious) - accomplished less than you would like? 1;2 Yes;No Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14781 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - sexual satisfaction scale MSQOLSxlInterestFmlScale The scale related to sexual satisfaction based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) The scale related to sexual satisfaction based on Multiple Sclerosis Quality of Life Scale (MSQOL-54) How much of a problem was each of the following for you during the past 4 weeks: ability to satisfy sexual partner 1;2;3;4 not a problem;a little of a problem;somewhat of a problem;very much a problem Numeric values

To be answered by men and women

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14760 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - fatigue scale MSQOLFtgeScale The scale related to proportion of time feeling fatigued based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). The scale related to proportion of time feeling fatigued based on Multiple Sclerosis Quality of Life Scale (MSQOL-54). How much of the time during the past 4 weeks did you feel worn out? 1;2;3;4;5;6 All of the time;Most of the time;A good bit of the time;Some of the time;A little of the time;None of the time Numeric values

No instructions available

Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Quality of life research 1995;4(3):187-206. Adult Supplemental 3.00 2013-06-11 00:00:00.0 Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

CSV