CDE Detailed Report

Disease: Multiple Sclerosis
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI)

Displaying 1 - 18 of 18
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C14721 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - confide frequency MSSSConfdeFreq The frequency of confiding based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of confiding based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to confide in or talk to about yourself or your problems? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14722 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - hug frequency MSSSHugFreq The frequency of hug availability based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of hug availability based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to hug you? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14723 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - relaxation frequency MSSSRelxtnFreq The frequency of relaxation based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of relaxation based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to get together with for relaxation? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14724 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - prepare meals frequency MSSSPrepMealsFreq The frequency of having meals prepared based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of having meals prepared based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to prepare your meals if you are unable to do it yourself? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14714 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - assistance bedridden frequency MSSSAssistBedRdnFreq The frequency of needing assistance bedridden based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of needing assistance bedridden based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to help you if you are confined to bed? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14725 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - advice frequency MSSSAdviceFreq The frequency of advice based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of advice based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. How often is someone available whose advice you really want? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14715 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - verbal communication frequency MSSSVerbCommunFreq The frequency of verbal communication based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of verbal communication based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to listen to you when you need to talk? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14726 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - assistance daily chores frequency MSSSAssistDailyChoresFreq The frequency of needing assistance on daily chores based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of needing assistance on daily chores based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to help with daily chores if you are sick? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14716 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - crisis advice frequency MSSSCrisisAdviceFreq The frequency of crisis advice based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of crisis advice based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to give you good advice about a crisis? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14727 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - emotional consultation frequency MSSSEmotnlConsultFreq The frequency of emotional consultation based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of emotional consultation based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to share your private worries and fears with? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14717 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - physician transportation frequency MSSSPhysicnTransprtFreq The frequency of having someone available to transport to physician based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of having someone available to transport to physician based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to take you to the doctor if you need to go? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14728 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - solution consultation frequency MSSSSolutnConsultFreq The frequency of solution consultation based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of solution consultation based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. How often is someone available to turn to for suggestions about how to deal with a personal problem? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14718 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - share love frequency MSSSShareLveFreq The frequency of sharing love based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of sharing love based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to show you love and affection? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14729 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - joy frequency MSSSJoyFreq The frequency of joy based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of joy based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to do something enjoyable with? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14719 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - share happiness frequency MSSSShareHappnssFreq The frequency of sharing happiness based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of sharing happiness based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to have a good time with? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14730 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - compassion frequency MSSSCompssnFreq The frequency of compassion based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of compassion based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. How often is someone available to understand your problems? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14720 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - information frequency MSSSInfoFreq The frequency of information based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of information based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to give you information to help you understand a situation? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C14731 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - love frequency MSSSLoveFreq The frequency of love based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified. The frequency of love based on Medical Outcomes Study (MOS) Social Support Survey modified. How often is someone available to love and make you feel wanted? 1;2;3;4;5 None of the time;A little of the time;Some of the time;Most of the time;All of the time Numeric values

Although the time frame is not given, patients who ask for a time frame should be instructed to think of the support they had available during the past 4 weeks.

Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler. 1999 Aug;5(4):251-9. Adult Supplemental 3.00 2013-06-11 00:00:00.0 MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

CSV