CDE Detailed Report

Disease: Huntington's Disease
Sub-Domain: Emotional/Behavioral
CRF: Frontal Systems Behavioral Scale (FrSBe)

Displaying 51 - 63 of 63
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21084 Frontal Systems Behavior Scale (FrSBE) - Total T score FrSBeTotalTScore T score for all scales as part of Frontal Systems Behavior Scale (FrSBE) T score for all scales as part of Frontal Systems Behavior Scale (FrSBE) T score for all scales Numeric Values

To plot an individual's FrSBe profile, one must first convert the raw scores to T scores using the normative tables located in the appendixes of this manual. Identify the appropriate normative tables according to the rating form used (Self-Rating or Family Rating Form), the gender, age, and education level of the rated individual, and the Total scale or subscale needed. Locate the specific raw score for the Total scale in the Total scale appendix table. Then, locate the corresponding T score for the selected raw score for the Total scale. Enter the T score in the space provided just below the corresponding raw score on the bottom of the profile form. Use the same procedure to convert the subscale raw scores to T scores.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Free-Form Entry

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C20964 Frontal Systems Behavior Scale (FrSBE) - Speech only with verbal prompt frequency scale FrSBeSpeakOnlyWhenSpokenToFreq Frequency of speaking only when spoken to as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Frequency of speaking only when spoken to as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Speaks only when spoken to 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21039 Frontal Systems Behavior Scale (FrSBE) - Appearance grooming interest frequency scale FrSBeCaresAboutAppearanceFreq Frequency of caring about his/her appearance (for example, daily grooming) as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Frequency of caring about his/her appearance (for example, daily grooming) as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Cares about his/her appearance (for example, daily grooming) 5;4;3;2;1 Almost never;Seldom;Sometimes;Frequently;Almost always Numeric Values

Reverse scoring. The instructions may be simplified or repeated as often as necessary until the rater fully understands them. As noted earlier, the examiner should remain available to answer any questions the patient or rater may have (regardless of any cognitive limitations they may have) as they complete the appropriate rating form. It should be noted that there is a visual break on the second page of each rating form between Items 32 and 33, along with the instruction "Read each of the following items carefully before responding." This is to ensure that the rater is alert to the shift in item content, namely from items reflecting negative or maladaptive behaviors (Items 1-32) to items reflecting more positive or adaptive behaviors (Items 33-46). It is recommended that the examiner visually inspect the rater's responses to Items 33-46 to confirm that the pattern of ratings has changed in the appropriate direction. If it appears that the rater has not responded to these items in the expected direction, then the examiner should review with the rater his or her individual responses to these items.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C20991 Frontal Systems Behavior Scale (FrSBE) - Anger easily frequency scale FrSBeAngeredEasilyFreq Frequency of being easily angered or irritated, having emotional outbursts without good reason as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Frequency of being easily angered or irritated, having emotional outbursts without good reason as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Is easily angered or irritated; has emotional outbursts without good reason 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21063 Frontal Systems Behavior Scale (FrSBE) - Repeat mistakes frequency scale FrSBeRepeatsMistakesFreq Frequency of making the same mistakes over and over, not learning from past experience as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of making the same mistakes over and over, not learning from past experience as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Makes the same mistakes over and over, does not learn from past experience 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21017 Frontal Systems Behavior Scale (FrSBE) - Action idea repetition frequency scale FrSBeRepeatsActionsFreq Frequency of repeating certain actions or getting stuck on certain ideas as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of repeating certain actions or getting stuck on certain ideas as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Repeats certain actions or gets stuck on certain ideas 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21086 Frontal Systems Behavior Scale (FrSBE) - Form type FrSBeFormTyp Type of the Frontal Systems Behavior Scale (FrSBE) form Type of the Frontal Systems Behavior Scale (FrSBE) form Form type Self-Rating;Family Rating Self-Rating;Family Rating Numeric Values

Indicate if the form was completed by the subject or by the family member.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C20967 Frontal Systems Behavior Scale (FrSBE) - Action speech embarassment frequency scale FrSBeSayEmbarrassingThingsFreq Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Does or says embarrassing things 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21040 Frontal Systems Behavior Scale (FrSBE) - Impulsiveness frequency scale FrSBeImpulsitiveFreq Frequency of doing things impulsively as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Frequency of doing things impulsively as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Does things impulsively 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C20994 Frontal Systems Behavior Scale (FrSBE) - Fabrication incredible story when unable remember frequency scale FrSBeMakeUpStoriesFreq Frequency of making up fantastic stories when unable to remember something as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Frequency of making up fantastic stories when unable to remember something as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale Makes up fantastic stories when unable to remember something 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21065 Frontal Systems Behavior Scale (FrSBE) - Lack initiative motivation frequency scale FrSBeLacksInitiativeFreq Frequency of having difficulty starting an activity, lacking initiative, motivation as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Frequency of having difficulty starting an activity, lacking initiative, motivation as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale Has difficulty starting an activity, lacks initiative, motivation 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21018 Frontal Systems Behavior Scale (FrSBE) - Childish humor frequency scale FrSBeChildishHumorFreq Frequency of being overly silly, has childish sense of humour as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Frequency of being overly silly, has childish sense of humour as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale Is overly silly, has childish sense of humor 1;2;3;4;5 Almost never;seldom;Sometimes;Frequently;Almost always Numeric Values

As part of (your or your family member's) evaluation, it would be helpful to have your observations about (your or his/her) behavior. This questionnaire will allow us to better understand (your or your relative's) behavior. You will be asked to rate the frequency of (your or his/her) behavior on a scale of 1 to 5 where 1 is Almost never, 2 is Seldom, 3 is Sometimes, 4 is Frequently, and 5 is Almost always. You will be asked to rate (your or his/her) behavior at two points in time: before (your or his/her) illness, injury, or problems began and at the present time, or after the illness or injury occurred. Be sure you complete both columns on the form since they are both important for measuring changes in (your or your relative's) behavior. Please read each of the phrases on the form that are used to describe a person's behavior. The questionnaire asks, "How often (do you or does your relative) engage in the behavior described at each point in time?'' Circle the number in each column, Before illness or injury and After illness or injury, that corresponds to your rating for the behavior described.

Grace J, Malloy PF. Frontal Systems Behavior Scale professional manual. Lutz, FL: Psychological Assessment Resources, Inc.; 2001. Copyright 2001 by PAR, (http://www4.parinc.com/) Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C21092 Frontal Systems Behavior Scale (FrSBE) - Missing answer total count FrSBeMissingItemsTtlCount Total count of unanswered or missing questions as part of Frontal Systems Behavior Scale (FrSBE) form Total count of unanswered or missing questions as part of Frontal Systems Behavior Scale (FrSBE) form Unanswered or missing questions total count Numeric Values

Examine the scoring sheet and circle the item number of each item that was left unanswered. An item should be counted as unanswered (missing) if either one or both of the responses (i.e., "Before illness or injury" or "After illness or injury") is missing. Count the number of circled item numbers and write the total number of missing items in the space provided at the bottom of page 3 of the scoring sheet.

Adult Supplemental 1.00 2015-05-26 09:55:58.0 Frontal Systems Behavioral Scale (FrSBe) Emotional/Behavioral Outcomes and End Points

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