CDE Detailed Report

Disease: Mitochondrial Disease
Sub-Domain: Emotional/Behavioral
CRF: Cambridge Behavioral Inventory - Revised

Displaying 1 - 47 of 47
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11564 Cambridge Behavioural Inventory Revised (CBI-R) - less enthusiasm interests frequency score CBIRLessEnthusUsualIntrstFrqSc Score for frequency over past month of showing less enthusiasm for his or her usual interests as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of showing less enthusiasm for his or her usual interests as part of the Cambridge Behavioural Inventory Revised (CBI-R). Shows less enthusiasm for his or her usual interests 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11532 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using electrical appliance frequency score CBIRDffcltUsngElecAppliFreqScr Score for frequency over past month of difficulty using electrical appliances as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of difficulty using electrical appliances as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has difficulties using electrical appliances 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

e.g. TV, radio, cooker, washing machine

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11543 Cambridge Behavioural Inventory Revised (CBI-R) - uncooperative asked do something frequency score CBIRUncoopAskdDoSomeFreqScore Score for frequency over past month of being uncooperative when asked to do something as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of being uncooperative when asked to do something as part of the Cambridge Behavioural Inventory Revised (CBI-R). Is uncooperative when asked to do something 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11554 Cambridge Behavioural Inventory Revised (CBI-R) - increased sweet preference frequency score CBIRIncrsdSweetPrefFreqScore Score for frequency over past month of preferring sweet foods more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of preferring sweet foods more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R). Prefers sweet foods more than before 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11565 Cambridge Behavioural Inventory Revised (CBI-R) - low interest new thing frequency score CBIRLowInterstNewThingFreqScr Score for frequency over past month of showing little interest in doing new things as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of showing little interest in doing new things as part of the Cambridge Behavioural Inventory Revised (CBI-R). Shows little interest in doing new things 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11533 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty writing frequency score CBIRDifficultyWritingFreqScore Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has difficulties writing 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

letters, Christmas cards, lists, etc.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11544 Cambridge Behavioural Inventory Revised (CBI-R) - socially embarrass behavior frequency score CBIRSocalEmbarassBehavFreqScr Score for frequency over past month of showing socially embarrassing behavior as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of showing socially embarrassing behavior as part of the Cambridge Behavioural Inventory Revised (CBI-R). Shows socially embarrassing behavior 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11555 Cambridge Behavioural Inventory Revised (CBI-R) - repeatedly eat same food frequency score CBIRRptdEatSameFoodFreqScore Score for frequency over past month of wanting to eat the same foods repeatedly as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of wanting to eat the same foods repeatedly as part of the Cambridge Behavioural Inventory Revised (CBI-R). Wants to eat the same foods repeatedly 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11566 Cambridge Behavioural Inventory Revised (CBI-R) - fail contact friend family frequency score CBIRFailContactFrndFmlyFreqScr Score for frequency over past month of failing to maintain motivation to keep in contact with friends or family as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of failing to maintain motivation to keep in contact with friends or family as part of the Cambridge Behavioural Inventory Revised (CBI-R). Fails to maintain motivation to keep in contact with friends or family 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11534 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using telephone frequency score CBIRDifficultyUsingTeleFreqScr Score for frequency over past month of having difficulties using the telephone as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having difficulties using the telephone as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has difficulties using the telephone 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11545 Cambridge Behavioural Inventory Revised (CBI-R) - tactless suggestive remark frequency score CBIRTactlesSugestRemrkFreqScr Score for frequency over past month of making tactless or suggestive remarks as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of making tactless or suggestive remarks as part of the Cambridge Behavioural Inventory Revised (CBI-R). Makes tactless or suggestive remarks 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11556 Cambridge Behavioural Inventory Revised (CBI-R) - increased appetite frequency score CBIRIncreasedAppetiteFreqScore Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R). Her/his appetite is greater, s/he eats more than before 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11524 Cambridge Behavioural Inventory Revised (CBI-R) - poor daily memory frequency score CBIRPoorDlyMemryFreqScore Score for frequency over past month of poor day-to-day memory as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of poor day-to-day memory as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has poor day-to-day memory 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

e.g. about conversations, trips, etc.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11567 Cambridge Behavioural Inventory Revised (CBI-R) - indifferent concerns family frequency score CBIRIndiffConcernsFamlyFreqScr Score for frequency over past month of appearing indifferent to the worries and concerns of family members as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of appearing indifferent to the worries and concerns of family members as part of the Cambridge Behavioural Inventory Revised (CBI-R). Appears indifferent to the worries and concerns of family members 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11535 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty making hot drink frequency score CBIRDifficltyMakHotDrnkFreqScr Score for frequency over past month of having difficulties making a hot drink as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having difficulties making a hot drink as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has difficulties making a hot drink 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

e.g. tea/coffee

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11546 Cambridge Behavioural Inventory Revised (CBI-R) - impulsive action frequency score CBIRImpulsiveActionFreqScore Score for frequency over past month of acting impulsively without thinking as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of acting impulsively without thinking as part of the Cambridge Behavioural Inventory Revised (CBI-R). Acts impulsively without thinking 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11557 Cambridge Behavioural Inventory Revised (CBI-R) - decline table manners frequency score CBIRDeclineTableMannerFreqScr Score for frequency over past month of table manners declining, e.g., stuffing food into mouth as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of table manners declining, e.g., stuffing food into mouth as part of the Cambridge Behavioural Inventory Revised (CBI-R). Table manners are declining 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

e.g. stuffing food into mouth

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11525 Cambridge Behavioural Inventory Revised (CBI-R) - asks same question frequency score CBIRAsksSameQuestFreqScore Score for frequency over past month of ask the same questions over and over again as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of ask the same questions over and over again as part of the Cambridge Behavioural Inventory Revised (CBI-R). Asks the same questions over and over again 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11568 Cambridge Behavioural Inventory Revised (CBI-R) - reduced affection frequency score CBIRReducedAffectionFreqScore Score for frequency over past month of showing reduced affection as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of showing reduced affection as part of the Cambridge Behavioural Inventory Revised (CBI-R). Shows reduced affection 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11536 Cambridge Behavioural Inventory Revised (CBI-R) - problem handle money pay bills frequency score CBIRProbHndlMonPayBillsFreqScr Score for frequency over past month of having problems handling money or paying bills as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having problems handling money or paying bills as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has problems handling money or paying bills 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11547 Cambridge Behavioural Inventory Revised (CBI-R) - crying frequency score CBIRCryingFreqScore Score for frequency over past month of crying as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of crying as part of the Cambridge Behavioural Inventory Revised (CBI-R). Cries 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11558 Cambridge Behavioural Inventory Revised (CBI-R) - night sleep disturb frequency score CBIRNightSleepDisturbFreqScore Score for frequency over past month of sleep being disturbed at night as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of sleep being disturbed at night as part of the Cambridge Behavioural Inventory Revised (CBI-R). Sleep is disturbed at night 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11526 Cambridge Behavioural Inventory Revised (CBI-R) - loses misplaces things frequency score CBIRLoseMisplaceThingFreqScore Score for frequency over past month of losing or misplacing things as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of losing or misplacing things as part of the Cambridge Behavioural Inventory Revised (CBI-R). Loses or misplaces things 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11537 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty groom self frequency score CBIRDifficultyGroomSelfFreqScr Score for frequency over past month of having difficulties grooming self as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having difficulties grooming self as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has difficulties grooming self 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

e.g. shaving or putting on make-up

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11569 Cambridge Behavioural Inventory Revised (CBI-R) - other comments text CBIROtherCommentsText Text description of any other comments as part of the Cambridge Behavioural Inventory Revised (CBI-R). Text description of any other comments as part of the Cambridge Behavioural Inventory Revised (CBI-R). Any other comments Alphanumeric

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points 255

Free-Form Entry

C11548 Cambridge Behavioural Inventory Revised (CBI-R) - sad depressed frequency score CBIRSadDepressedFreqScore Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R). Appears sad or depressed 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11559 Cambridge Behavioural Inventory Revised (CBI-R) - more day sleep frequency score CBIRMoreDaySleepFreqScore Score for frequency over past month of sleeping more by day than before as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of sleeping more by day than before as part of the Cambridge Behavioural Inventory Revised (CBI-R). Sleeps more by day than before 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

cat naps, etc.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11527 Cambridge Behavioural Inventory Revised (CBI-R) - forgets names familiar people frequency score CBIRFrgtNameFamilPeopFreqScore Score for frequency over past month of forgetting names of familiar people as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of forgetting names of familiar people as part of the Cambridge Behavioural Inventory Revised (CBI-R). Forgets the names of familiar people 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11538 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty dress self frequency score CBIRDifficultyDressSelfFreqScr Score for frequency over past month of having difficulties dressing self as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having difficulties dressing self as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has difficulties dressing self 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11570 Cambridge Behavioural Inventory Revised (CBI-R) - total score value CBIRTotalScoreVal Total score from the sum of all questions as part of the Cambridge Behavioural Inventory Revised (CBI-R). Total score from the sum of all questions as part of the Cambridge Behavioural Inventory Revised (CBI-R). Total score Numeric Values

The sum of answers to questions 1-45.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Free-Form Entry

C11549 Cambridge Behavioural Inventory Revised (CBI-R) - restless agitated frequency score CBIRRestlessAgitatedFreqScore Score for frequency over past month of being very restless or agitated as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of being very restless or agitated as part of the Cambridge Behavioural Inventory Revised (CBI-R). Is very restless or agitated 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11560 Cambridge Behavioural Inventory Revised (CBI-R) - rigid fixed idea opinion frequency score CBIRRigidFixedIdeaOpinFreqScr Score for frequency over past month of being rigid and fixed in her/his ideas and opinions as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of being rigid and fixed in her/his ideas and opinions as part of the Cambridge Behavioural Inventory Revised (CBI-R). Is rigid and fixed in her/his ideas and opinions 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11528 Cambridge Behavioural Inventory Revised (CBI-R) - forgets object names frequency score CBIRFrgtObjectNameFreqScore Score for frequency over past month of forgetting names of objects and things as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of forgetting names of objects and things as part of the Cambridge Behavioural Inventory Revised (CBI-R). Forgets the names of objects and things 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11539 Cambridge Behavioural Inventory Revised (CBI-R) - problem feed self unassisted frequency score CBIRProbFeedSelfUnassitFreqScr Score for frequency over past month of having problems feeding self without assistance as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having problems feeding self without assistance as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has problems feeding self without assistance 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11550 Cambridge Behavioural Inventory Revised (CBI-R) - irritable frequency score CBIRIrritableFreqScore Score for frequency over past month of being very irritable as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of being very irritable as part of the Cambridge Behavioural Inventory Revised (CBI-R). Is very irritable 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11561 Cambridge Behavioural Inventory Revised (CBI-R) - develop fixed routine frequency score CBIRDevelopFixedRoutineFrqScr Score for frequency over past month of developing routines from which s/he cannot easily be discouraged as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of developing routines from which s/he cannot easily be discouraged as part of the Cambridge Behavioural Inventory Revised (CBI-R). Develops routines from which s/he can not easily be discouraged 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

e.g., wanting to eat or go for walks at fixed times

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11529 Cambridge Behavioural Inventory Revised (CBI-R) - poor read TV concentration frequency score CBIRPoorReadTVCncntratnFreqScr Score for frequency over past month of showing poor concentration while reading or watching television as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of showing poor concentration while reading or watching television as part of the Cambridge Behavioural Inventory Revised (CBI-R). Shows poor concentration when reading or watching television 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11540 Cambridge Behavioural Inventory Revised (CBI-R) - problem bathe self frequency score CBIRProbBatheSelfFreqScore Score for frequency over past month of having problems bathing or showering self as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having problems bathing or showering self as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has problems bathing or showering self 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11551 Cambridge Behavioural Inventory Revised (CBI-R) - see things not there frequency score CBIRSeeThngsNotThereFreqScore Score for frequency over past month of seeing things that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of seeing things that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R). Sees things that are not really there 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

visual hallucinations

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11562 Cambridge Behavioural Inventory Revised (CBI-R) - clock watch preoccupy time frequency score CBIRClckWtchPreoccTimeFreqScr Score for frequency over past month of clock watching or appearing pre-occupied with time as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of clock watching or appearing pre-occupied with time as part of the Cambridge Behavioural Inventory Revised (CBI-R). Clock watches or appears pre-occupied with time 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11530 Cambridge Behavioural Inventory Revised (CBI-R) - forget day frequency score CBIRForgetDayFreqScore Score for frequency over past month of forgetting what day it is as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of forgetting what day it is as part of the Cambridge Behavioural Inventory Revised (CBI-R). Forgets what day it is 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11541 Cambridge Behavioural Inventory Revised (CBI-R) - inappropriate humor laughter frequency score CBIRInappropHumorLaughFrqScore Score for frequency over past month of finding humor or laughing at things others do not find funny as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of finding humor or laughing at things others do not find funny as part of the Cambridge Behavioural Inventory Revised (CBI-R). Finds humor or laughs at things others do not find funny 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11552 Cambridge Behavioural Inventory Revised (CBI-R) - hear voices not there frequency score CBIRHearVoicesNotThereFreqScr Score for frequency over past month of hearing voices that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of hearing voices that are not really there as part of the Cambridge Behavioural Inventory Revised (CBI-R). Hears voices that are not really there 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

auditory hallucinations

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11563 Cambridge Behavioural Inventory Revised (CBI-R) - repeat expression phrase frequency score CBIRRepeatdExprsnPhraseFreqScr Score for frequency over past month of repeatedly using the same expression or catch phrase as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of repeatedly using the same expression or catch phrase as part of the Cambridge Behavioural Inventory Revised (CBI-R). Repeatedly uses the same expression or catch phrase 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11531 Cambridge Behavioural Inventory Revised (CBI-R) - confused unusual surroundings frequency score CBIRCnfsdUnuslSrrndngsFreqScr Score for frequency over past month of becoming confused or muddled in unusual surroundings as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of becoming confused or muddled in unusual surroundings as part of the Cambridge Behavioural Inventory Revised (CBI-R). Becomes confused or muddled in unusual surroundings 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11542 Cambridge Behavioural Inventory Revised (CBI-R) - temper outburst frequency score CBIRTemperOutburstFreqScore Score for frequency over past month of having temper outbursts as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having temper outbursts as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has temper outbursts 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

C11553 Cambridge Behavioural Inventory Revised (CBI-R) - odd bizarre untrue ideas frequency score CBIROddBizarUntrueIdeasFreqScr Score for frequency over past month of having odd or bizarre ideas that cannot be true as part of the Cambridge Behavioural Inventory Revised (CBI-R). Score for frequency over past month of having odd or bizarre ideas that cannot be true as part of the Cambridge Behavioural Inventory Revised (CBI-R). Has odd or bizarre ideas that cannot be true 0;1;2;3;4 0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly Numeric Values

Refer to instructions on form.

Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Cambridge Behavioral Inventory - Revised Emotional/Behavioral Outcomes and End Points

Single Pre-Defined Value Selected

CSV