CDE Detailed Report

Disease: Friedreich's Ataxia
Subdomain Name: Ataxia and Performance Measures
CRF: Bladder Control Scale (BLCS)

Displaying 1 - 5 of 5
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale BLCSLostCont4WkScale The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) During the past 4 weeks, how often have you lost control of your bladder or had an accident? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Refer to instructions on form.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bladder Control Scale (BLCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11514 Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale BLCSAlmostLostCont4WkScale The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) During the past 4 weeks, how often have you almost lost control of your bladder or had an accident? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Refer to instructions on form.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bladder Control Scale (BLCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale BLCSAltActBladderProb4WkScale The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS) The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS) During the past 4 weeks, how often have you altered your activities because of bladder problems? 0;1;2;3;4 not at all;Once;Two to four times;More than weekly but not daily;Daily Numeric Values

Refer to instructions on form.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bladder Control Scale (BLCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity BLCSResLfeStylBladderProb4WkSv The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS) The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS) During the past 4 weeks, how much have bladder problems restricted your overall lifestyle? 0;1;2;3;4;5;6;7;8;9;10 not at all;1;2;3;4;5;6;7;8;9;Severely Numeric Values

Record only one number, with 0 = not at all, and 10 = severely.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bladder Control Scale (BLCS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C11517 Bladder Control Scale (BLCS) - scores sum value BLCSSumScores Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS) Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS) Numeric Values

Sum of Q1-Q4.

The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society Adult Exploratory 3.00 2013-07-11 15:03:49.2 Bladder Control Scale (BLCS) Ataxia and Performance Measures Outcomes and End Points

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