CDE Detailed Report
Disease: Friedreich's Ataxia
Subdomain Name: Social Status
CRF: Social Status
Displaying 1 - 11 of 11
Subdomain Name: Social Status
CRF: Social Status
Displaying 1 - 11 of 11
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C00204 | Employment current status | EmplmtStatu | Status of participant/subject's current employment | Status of participant/subject's current employment | Employment status | Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Other, specify;Disabled, permanently or temporarily;Keeping house;Student;Unknown | Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Other, specify;Disabled, permanently or temporarily;Keeping house;Student;Unknown | Alphanumeric |
Choose one. |
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Social Status | Social Status | Participant Characteristics |
Single Pre-Defined Value Selected |
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| C00206 | Family income supported persons count | FamilyIncmeSupprtPersCt | Count of all people, including the participant/subject, who are supported by the household gross annual income reported | Count of all people, including the participant/subject, who are supported by the household gross annual income reported | Family size | Numeric Values |
including yourself, number of people supported by family income |
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Social Status | Social Status | Participant Characteristics |
Free-Form Entry |
1 | 99 | ||||||||
| C00207 | Marital or partner status | MartlPartnerStatus | Status of participant/subject's current domestic relationship, whether marital or partnered | Status of participant/subject's current domestic relationship, whether marital or partnered | Marital/partner status | Never married;Married;Domestic partnership;Divorced;Separated;Widowed | Never married;Married;Domestic partnership;Divorced;Separated;Widowed | Alphanumeric |
Choose one. Response is obtained by report of the participant/subject or a reliable proxy. |
Johnson NJ, Backlund E, Sorlie PD, Loveless CA. Marital status and mortality: the national longitudinal mortality study. Ann Epidemiol. 2000;10:224-238. | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Social Status | Social Status | Participant Characteristics |
Single Pre-Defined Value Selected |
2188083 | |||||||
| C00214 | Living with persons count | PrsnCohabitCt | Count of other people with whom the participant/subject currently lives, cohabits, or stays | Count of other people with whom the participant/subject currently lives, cohabits, or stays | Number of people the participant/subject lives or stays with | Numeric Values |
Answer should be recorded as a 2 digit number (i.e., one should be recorded as 01, ten should be recorded as 10). Participant/subject should NOT be included. Include everyone who is living or staying at location for more than 2 months. Include anyone else staying there who does not have another place to stay even if they are here for 2 months or less. Do not include anyone who is living somewhere else for more than 2 months, such as college student living away or someone in the Armed Forces on deployment. |
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Social Status | Social Status | Participant Characteristics |
Free-Form Entry |
0 | 99 | ||||||||
| C00215 | Living with person relationship type | LivPrsnRltnshpTyp | Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays | Type(s) of relationship(s) that obtain between the participant/subject and all people with whom she or he currently lives, cohabits, or stays | Persons living with | Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown | Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown | Alphanumeric |
Skip this data element if the participant/ subject lives alone. If he/she lives with one or more people, choose all that apply. |
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau, http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf Four additional permissible values were added on for FA. | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Social Status | Social Status | Participant Characteristics |
Multiple Pre-Defined Values Selected |
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| C10678 | Employment full-time status | EmplymtFullTimeStatus | Status of participant/subject's current full-time employment | Status of participant/subject's current full-time employment | Full-time employment | Yes;No;Hours vary;Unknown;Not reported | Yes;No;Hours vary;Unknown;Not reported | Alphanumeric |
Choose one. |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Social Status | Social Status | Participant Characteristics |
Single Pre-Defined Value Selected |
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| C10679 | Paid assistance per day hours number | PdAsstPerDayHrsCt | How many hours in a typical 24-hour day do you have someone with you [paid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility? | The number of hours per day the subject/participant utilizes a paid assistant | How many hours in a typical 24-hour day do you have someone with you (paid assistance) to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility? | Numeric Values |
Record the number of hours of paid assistance the participant/subject receives in a 24-hour day. |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-11 15:03:49.2 | Social Status | Social Status | Participant Characteristics |
Free-Form Entry |
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| C10680 | Unpaid assistance per day hours number | UnpdAsstPerDayHrsCt | How many hours in a typical 24-hour day do you have someone with you [unpaid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility? | The number of hours per day the subject/participant utilizes an unpaid assistant | How many hours in a typical 24-hour day do you have someone with you (unpaid assistance) to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility? | Numeric Values |
Record the number of hours of unpaid assistance (family, others) the participant/subject receives in a 24-hour day. |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-11 15:03:49.2 | Social Status | Social Status | Participant Characteristics |
Free-Form Entry |
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| C10681 | In-home assistance for remembering, decision making, or judgment duration | InhmAsstRememDecisMakDura | Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering | Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering | How much time is someone with you in your home to assist you with activities that require remembering, decision making, or judgment? | Someone else is always with me to observe or supervise;Someone else is always around, but they only check on me now and then;Sometimes I am left alone for an hour or two;Sometimes I am left alone for most of the day;I have been left alone all day and all night, but someone checks in on me;I am left alone without anyone checking on me. | Someone else is always with me to observe or supervise;Someone else is always around, but they only check on me now and then;Sometimes I am left alone for an hour or two;Sometimes I am left alone for most of the day;I have been left alone all day and all night, but someone checks in on me;I am left alone without anyone checking on me. | Alphanumeric |
Choose only one. |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-11 15:03:49.2 | Social Status | Social Status | Participant Characteristics |
Single Pre-Defined Value Selected |
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| C18677 | Employment other text | EmplmtOTH | The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment | The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment | Other, specify | Alphanumeric |
Choose one. |
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) | Adult;Pediatric | Supplemental | 1.00 | 2014-05-27 13:34:46.0 | Social Status | Social Status | Participant Characteristics | 4000 |
Free-Form Entry |
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| C00012 | Education level USA type | EduLvlUSATyp | Highest grade or level of school participant/subject has completed or the highest degree received | Highest grade or level of school participant/subject has completed or the highest degree received | Education level | Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown | Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown | Alphanumeric |
Choose highest level attained. |
National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit Current Educational Attainment #011001 (https://www.phenxtoolkit.org) | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Social Status | Social Status | Participant Characteristics |
Single Pre-Defined Value Selected |
3134878 |
