CDE Detailed Report

Disease: Parkinson's Disease
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)

Displaying 1 - 11 of 11
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C10392 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - problem partner family scale SCOPAPSProbPrtnrFmlyScale Scale assessing whether the participant had problems getting along with his partner, family or good friends during the past month Scale assessing whether the participant had problems getting along with his partner, family or good friends during the past month During the past month, have you had problems getting along with your partner, family or good friends? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10393 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - sexual problem scale SCOPAPSSexProbScale Scale assessing whether the participant had problems in the area of sexuality in the past month Scale assessing whether the participant had problems in the area of sexuality in the past month During the past month, have you had problems in the area of sexuality? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10394 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - housebound scale SCOPAPSHousebndScale Scale assessing whether the participant felt more house-bound than he wanted to be in the past month Scale assessing whether the participant had felt more house-bound than he wanted to be in the past month During the past month, have you felt more house-bound than you would wish to be? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10395 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - other help scale SCOPAPSthHelpScale Scale assessing to what extent the participant felt he had to ask others for help during the last month Scale assessing to what extent the participant felt he had to ask others for help during the last month To what extent have you had the feeling that you have had to ask others for help too often during the past month? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10396 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - isolate lonely scale SCOPAPSIsolteLonlyScale Scale assessing to what extent the participant felt lonely during the past month Scale assessing to what extent the participant felt lonely during the past month To what extent have you felt isolated and lonely during the past month? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10397 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - difficult conversation scale SCOPAPSDiffcltConvoScale Scale assessing whether the participant had difficulty when having a conversation during the past month Scale assessing whether the participant had difficulty when having a conversation during the past month During the past month, have you had difficulty when having a conversation? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10398 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - disease ashamed scale SCOPAPSDiseaseAshamScale Scale assessing the extent of which the participant felt ashamed of his disease during the past month Scale assessing the extent of which the participant felt ashamed of his disease during the past month To what extent have you felt ashamed of your disease during the past month? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10399 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - future concern scale SCOPAPSFutreConcrnScale Scale assessing participant's concern for the future Scale assessing participant's concern for the future During the past month, have you been concerned about the future? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10389 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - difficulty work household scale SCOPAPSDiffcltyWrkHshldScale Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) During the past month, have you had difficulty with work, household or other chores? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10390 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - difficulty hobbies sport scale SCOPAPSDiffcltyHobbSprtScale Scale assessing whether the participant had difficulty with hobbies, sport or leisure activities in the past month Scale assessing whether the participant had difficulty with hobbies, sport or leisure activities in the past month During the past month, have you had difficulty with hobbies, sport or leisure activities? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

C10391 Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - uncertain contact other scale SCOPAPSUncrtnContctOthScale Scale assessing whether the participant felt uncertain around others in the past month Scale assessing whether the participant felt uncertain around others in the past month During the past month, have you felt uncertain in your contact with others? Not at all;A little;quite a bit;very much Not at all;A little;quite a bit;very much Alphanumeric

When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.

Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. ViruÉs-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391. Adult Supplemental 3.00 2013-07-22 09:34:41.527 Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS) Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

CSV