CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2338-C52597	C52597	Medical history ischemic stroke range	The element related to the number of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2365-C14463	C14463	Reflex plantar left response result	The results from reflex plantar response on the left side	Supplemental	Neurological Exam	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C52538	C52538	History subarachnoid hemorrhage indicator	Indicator for whether the participant/subject has a history of subarachnoid hemorrhage	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2498-C54095	C54095	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time scaled score	Complete time as a scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Exploratory	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52144	C52144	Clinician-Administered PTSD Scale for DSM-IV (CAPS) -Intense Fear/Horror Indicator	Indicator of intense fear/horror, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2485-C52350	C52350	12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score	Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54899	C54899	Blood transfusion surgery procedure indicator	Indicator of whether blood transfusion was performed during surgery or procedure	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2453-C21084	C21084	Frontal Systems Behavior Scale (FrSBE) - Total T score	T score for all scales as part of Frontal Systems Behavior Scale (FrSBE)	Supplemental	Frontal Systems Behavioral Scale (FrSBe)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18643	C18643	Brief Symptom Inventory-18 (BSI18)- Depression normalized T score	Normalized T score for depression symptom scale	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2433-C54982	C54982	Medication anticoagulant current former take duration	Duration in months for which the subject/participant took or has taken the selected former or current anticoagulant medication	Supplemental	Concomitant Medications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C52546	C52546	Brain aneurysm anatomic site other text	Free-text field to specify location of unruptured brain aneurysm(s)	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2498-C54081	C54081	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total time	The total time in seconds taken for the participant to complete Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Exploratory	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52155	C52155	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity C6 Scale	Scale of the intensity of the event C-6, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2434-C54907	C54907	Aneurysm treatment endovascular type	Type of endovascular aneurysm treatment	Supplemental	Surgical/Procedural Interventions	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2453-C21104	C21104	Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale invalid score indicator	Indicator if Executive Dysfunction subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE)	Supplemental	Frontal Systems Behavioral Scale (FrSBe)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52097	C52097	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity B1 Scale	Scale of the intensity of the event B-1, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2433-C54990	C54990	Cocaine expose year prior unruptured intracranial aneurysm presentation indicator	Indicator of whether the subject/participant was exposed to cocaine in the year prior to clinical presentation of unruptured intracranial aneurysm (UIA)	Supplemental	Concomitant Medications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2334-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52167	C52167	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - PTSD Criterion B Symptoms Indicator	Indicator of whether or not the number of PTSD criterion B symptoms is at least 1, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2435-C54928	C54928	Blood pressure diastolic target mean measurement	Target measurement for mean diastolic blood pressure	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2444-C52112	C52112	Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Symptom (Sx) Indicator	Indicator of symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)	Exploratory	Clinician-Administered PTSD Scale (CAPS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2484-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Supplemental	Return to Work	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2433-C54999	C54999	Medication immunosuppressant current former take other text	The free-text field related to 'Medication immunosuppressant current former type' specifying other text	Exploratory	Concomitant Medications	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2365-C18945	C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Exam	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2431-C54756	C54756	Injection site laterality type	Type for the side of the body to which an injection was administered	Supplemental	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.