CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58744 Specimen ambient light protection indicator

Indicate whether the specimen was protected from ambient light

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C13233 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score

Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)

 Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) True Stroke Stroke
C58752 Specimen expiration not applicable indicator

Indicate whether there is no expiration date for the specimen

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C14630 Anticoagulant agent in hospital type

Type(s) of anticoagulant agents received during the acute hospital stay

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C13456 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - sensorimotor deficit scale

The scale for sensorimotor deficit (any motor or sensory abnormality including cranial nerve deficits, visual, and hearing deficits) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)

 Supplemental-Highly Recommended Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older) True Stroke Stroke
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

 Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) True Stroke Stroke
C18985 Antiplatelet agent in hospital other text

The free-text field related to 'Antiplatelet agent in hospital type', specifying other text

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C58823 Pregnancy or delivery risk factor fetal abnormal recognize in utero text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C55746 Specimen surround dry ice shipment indicator

The indicator related to whether the specimen was surrounded by dry ice for shipping

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

 Supplemental-Highly Recommended SAH Surgical/Procedural Interventions False Stroke Stroke
C13464 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - total score

The total score on the Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)

 Supplemental-Highly Recommended Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older) True Stroke Stroke
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) True Stroke Stroke
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C55325 Specimen convalescent collected indicator

Indicator of whether or not convalescent samples were collected

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C13879 Imaging modality vessel imaging angiography type

Indicates imaging modality for vessel imaging angiography

 Supplemental-Highly Recommended Vessel Imaging Angiography False Stroke Stroke
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C20417 National Institutes of Health Stroke Scale (NIHSS) - Motor leg amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) True Stroke Stroke
C58952 Antiplatelet agent stroke discharge prescribe type

Type(s) of antiplatelet agents prescribed at discharge following stroke

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C54692 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale

Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health

 Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True Stroke Stroke
C58737 Blood collection tube number

Enter the number of collection tubes used

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Stroke Stroke
Displaying 101 - 125 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.