CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1178-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58956	C58956	Anti diabetic agent stroke discharge prescribe type	Type(s) of anti-diabetic agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C14638	C14638	Antithrombotic therapy not prescribed reason	Reason(s) for not prescribing antithrombotic therapy (i.e., no anticoagulant or antiplatelet agents), documented by a physician, advance practice nurse or physician assistant	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58949	C58949	Medication stroke discharge prescribe category	Class(es) of medications the participant/subject was prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58957	C58957	Anti diabetic agent stroke discharge prescribe other text	The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C14629	C14629	Anticoagulant agent in hospital indicator	Whether the participant/subject received anticoagulant agents during the acute hospital stay, not including venous prophylaxis dose Unfractionated heparin, LMW heparin, etc	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C18984	C18984	Anticoagulant agent in hospital other text	The free-text field related to 'Anticoagulant agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58950	C58950	Anticoagulant agent stroke discharge prescribe type	Type(s) of anticoagulant agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C14630	C14630	Anticoagulant agent in hospital type	Type(s) of anticoagulant agents received during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C18985	C18985	Antiplatelet agent in hospital other text	The free-text field related to 'Antiplatelet agent in hospital type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1178-C58951	C58951	Anticoagulant agent stroke discharge prescribe other text	The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1160-C14183	C14183	Stroke symptom timing in relation to stroke onset category	This element captures the time course of a symptom associated with the index stroke. The element is intended to be recorded for each symptom separately	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14187	C14187	Stroke symptom pediatric-specific type	The pediatric-specific symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14188	C14188	Neonatal level of consciousness type	Type of abnormal level of consciousness of the neonate	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14178	C14178	Stroke symptom type	The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14189	C14189	Neonatal encephalopathy level type	Level of neonatal encephalopathy according to the Sarnat Staging	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14179	C14179	Stroke symptom experienced indicator	Indicates whether or not the symptom was experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C18905	C18905	Stroke symptom other text	The free-text field related to 'Stroke symptom type' specifying other text. The symptom experienced around the time of the stroke event	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C18906	C18906	Stroke symptom pediatric-specific other text	The free-text field related to 'Stroke symptom pediatric-specific type' specifying other text	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C22780	C22780	Date time clock type	Type of clock used to record date and time	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14181	C14181	Stroke symptom resolution date and time	Date (and time, if applicable and known) the Stroke symptom resolved	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C59006	C59006	Date time unknown status	Status indicating that the date/time of an event is unknown	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1160-C14182	C14182	Stroke symptom duration range	The range of approximate stroke symptom duration. This is especially important if the diagnosis is Transient Ischemic Attack (TIA)	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1154-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.