CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Stroke Types and Subtypes Stroke Stroke
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Pregnancy and Perinatal History Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Stroke Stroke
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Stroke Stroke
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Stroke Stroke
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

Supplemental Social Status Stroke Stroke
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Stroke Stroke
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Stroke Stroke
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Stroke Stroke
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Supplemental Demographics Stroke Stroke
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Supplemental Demographics Stroke Stroke
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Physical/Neurological Exam Stroke Stroke
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

Supplemental Demographics Stroke Stroke
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

Supplemental Demographics Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Stroke Stroke
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Stroke Stroke
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Exploratory Demographics Stroke Stroke
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

Supplemental Demographics Stroke Stroke
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

Supplemental Demographics Stroke Stroke
C00204 Employment current status

Status of participant/subject's current employment

Supplemental Social Status Stroke Stroke
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

Supplemental Social Status Stroke Stroke
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Stroke Stroke
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Stroke Stroke
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

Supplemental Social Status Stroke Stroke
Displaying 1 - 25 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.