CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1071-C12685	C12685	Wheelchair use frequency	Frequency with which the participant/subject uses their wheelchair, if applicable	Supplemental	External Devices - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12272	C12272	Western Blot result	Result of the assay(s) performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12271	C12271	Western Blot assay performed name	Name(s) of the assay performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01541	C01541	Weight measurement	Measurement of participant's weight	Core	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12944	C12944	Variant mutational analysis performed indicator	Indicator of whether the variant or mutational analysis was performed on the participant	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C12306	C12306	Ulna length measurement	The length of the ulna of the participant/subject	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C18834	C18834	Ulna length measure tool other text	The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C12307	C12307	Ulna length measure tool name	Instrument used to measure ulna length	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2012-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Grip Strength	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12296	C12296	Tissue specimen sweat gland innervation evaluate indicator	Indicator of whether sweat gland innervation was evaluated for the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2011-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C58650	C58650	Tissue specimen section thickness not known indicator	Indicator that the tissue specimen thickness is not known	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12286	C12286	Tissue specimen section thickness measurement	Measurement in microns of the thickness of the section taken from the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12290	C12290	Tissue specimen section quantify volume normalize type	Type of method used to normalize the volume of the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C18832	C18832	Tissue specimen section quantify volume normalize other text	The free-text field related to 'Tissue specimen section quantify volume normalize type' specifying other text. Type of method used to normalize the volume of the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12289	C12289	Tissue specimen section quantify type	Type of quantification used in evaluating the sections taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.