CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0819-C19184	C19184	Urinary tract drug use indicator	Indicator for urinary tract drugs used within the last year	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20368	C20368	Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale	The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22285	C22285	Thyroid disease prior thyroiditis diagnosis date	Date when prior thyroiditis disease was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19474	C19474	Spine length integer range value	Value on the integer range of spine length in millimeters	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19371	C19371	Imaging pre-existing hardware surgery lower limit instrumentation anatomic site	The lower limit instrumentation anatomic site for pre-existing hardware surgeries	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19163	C19163	Acute care unit admission time	The time at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19495	C19495	Spinal cord injury upper extremity hand reconstructive surgery status	Indicate whether upper extremity/hand reconstructive surgery was performed	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19131	C19131	Facility discharge time	The time at which the patient was discharged from the facility	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22300	C22300	Laboratory procedure thyroid function thyroid-stimulating hormone plasma serum value	The value related to concentration of thyroid stimulating hormone (TSH) in the plasma/serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C55476	C55476	Congenital genetic spinal cord injury etiology specify text	The free text field to describe the congenital or genetic etiology of spinal cord injury	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19104	C19104	Upper extremity surgery left soft tissue tendon wrist performed indicator	The indicator for the surgical procedure of the left tendon for wrist extension in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19211	C19211	Degenerative spine disorder surgery caused description	Description of surgery caused by degenerative spine disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C19247	C19247	Subject ID	Subject identification ID	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20384	C20384	Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale	The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19416	C19416	Brain Motor Control Assessment (BMCA) - Response present indicator	Indicator of whether a muscle response was present as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22316	C22316	Laboratory procedure adrenal function 24 hour cortisol urine value	The value related to concentration of cortisol tested in the urine over 24 hours	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19112	C19112	Upper extremity surgery left osteotomy humerus performed indicator	The indicator for the surgical procedure of the restoration of the left humerus in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19348	C19348	Cardiovascular history other text	The free-text field related to "Cardiovascular history condition type" specifying other text	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19430	C19430	Brain Motor Control Assessment (BMCA) - Phasic stretch after discharge indicator	Indicator of after-discharge in phasic stretch (taps) evaluation as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22332	C22332	Laboratory procedure anterior pituitary function prolactin plasma value	The value related to concentration of prolactin in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2076-C19247	C19247	Subject ID	Subject identification ID	Exploratory	Electrical Perceptual Thresholds (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19120	C19120	Upper extremity surgery left osteotomy fingers/thumb performed indicator	The indicator for the surgical procedure of the restoration of the left fingers/thumb in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C19257	C19257	Residence area type	Type describing the participant's/subject's current location of residence	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F1820-C19090	C19090	Stabilization and fusion segment number	The number of the stabilization and fusion segment in the surgical procedure	Supplemental	International SCI Spinal Intervention and Spinal Procedures Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 126 - 150 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.