CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19127 Facility name

Name of facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C20372 Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale

Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C22293 Thyroid disease prior thyroid nodule diagnosis date

Date when prior thyroid nodule was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19380 Spine angulation level anatomic site

The anatomic site level of angulation in spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19169 Special care unit discharge date

Date at which participant was discharged from special care unit

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19499 Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text

The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C22178 Laboratory procedure oral glucose tolerance test diagnostic classification type

This variable will assess the ability to handle an oral glucose load

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19328 Scalp recording-reference electrode configuration type

Type of electrode configuration scalp recording-reference

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19388 Spine ligamentous injury rupture type

The type as related to ligamentous injury or rupture in spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19492 Spinal cord injury upper extremity shoulder function status

The status of shoulder function as part of the test in spinal cord injury

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19142 Activity type

The types of activities related to rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental-Highly Recommended International SCI Core Data Set False Spinal Cord Injury Spinal Cord Injury
C22233 Laboratory procedure parathyroid hormone plasma value

This variable documents the level of parathyroid gland function

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C19349 Thermal quantitative sensory testing standardized instruction text

Standardized instructions for thermal quantitative sensory testing

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19449 Spine canal cord location type

Type of canal/cord location

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19438 Brain Motor Control Assessment (BMCA) - Average maximum pressure value

The average of all maximum pressure values recorded in the designated protocol as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C19151 Discontinuation date

The date of discontinuation

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19485 Education study hour week count

The number of hours per week in educational study

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 276 - 300 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.