CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06229 Bowel management independence past three months scale

The scale that assesses the participant's degree of independence during bowel management within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18790 Perianal problem other text

The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06012 Urinary tract impairment unrelate injury indicator

Indicator of urinary tract impairment unrelated to spinal cord lesion

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C06258 Bladder function bladder sensation type

Documents the bladder sensation during filling cystometry. Although the bladder sensation is assessed during filling cystometry the assumption that it is sensation from the bladder alone, without urethral or pelvic components may be false (Abrams et al. 2002). Normal bladder sensation can be judged by three defined points noted during filling cystometry and evaluated in relation to the bladder volume at that moment and in relation to the patient's symptomatic complaints

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06293 Medical history condition type indicator

Indicator of whether the participant/subject has a history of the pre-specified medical condition/disease.

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06317 Psychogenic erection scale

Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C06103 Tobacco smoke quit date

Date (and time, if applicable and known) the participant/subject quit smoking

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18797 Sexual problem unrelate spinal cord lesion specify text

The free-text field related to 'Sexual problem unrelate spinal cord lesion indicator'. Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06240 Bowel dysfunction impact life quality scale

The self report scale that describes impact on quality of life caused by neurogenic bowel dysfunction.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C53037 Fecal incontinence past four week average frequency

Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stools

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C18151 Thyroid disease specify name

Specifies the name of thyroid disease diagnosed

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C06363 Serum lipid anti lipid therapy indicator

Indicates whether a fasting lipid profile was conducted while the participant/subject was on anti-lipid therapy

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06112 Ventilatory assistance type

Type of assistance device utilized to augment ventilation

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18144 Bowel care time stool pass care past three months average indicator

Indicator for whether the average time spent waiting for the last stool passes before ending bowel care is not applicable or unknown

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C18145 Procedure perform time

Time of day at which the examination was taken measured in an hour/minute format (HHMM).

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C18163 Gonadal disease specify name

Specifies the name of gonadal disease

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C06324 SCI Classification motor exam anatomic site

Muscle (and associated spinal cord level) evaluated during the motor examination

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C06071 Pain interfere mood scale

Scale that evaluates to what extent pain has interfered with the participants mood

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C18779 Urinary tract impairment unrelate injury specify text

The free-text field related to 'Urinary tract impairment unrelate injury indicator'. Indicator of urinary tract impairment unrelated to spinal cord lesion

Supplemental International SCI Lower Urinary Tract Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C06122 Renography radioactive isotope type

Type of radioactive isotope used to perform the renography

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
Displaying 201 - 225 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.