CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1724-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19160	C19160	Discharge facility type	The type of facility to which the participant was discharged	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19127	C19127	Facility name	Name of facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19162	C19162	Acute care unit admission date	The date at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19128	C19128	Facility arrival date	Date when patient arrived at facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19163	C19163	Acute care unit admission time	The time at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19129	C19129	Facility arrival time	Time at which patient arrived at facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19166	C19166	Special care unit admittance indicator	Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19167	C19167	Special care unit type	Type of special care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19130	C19130	Facility discharge date	Date when patient was discharged from facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19168	C19168	Special care unit admission date	Date at which participant was admitted to special care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19131	C19131	Facility discharge time	The time at which the patient was discharged from the facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19169	C19169	Special care unit discharge date	Date at which participant was discharged from special care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C04807	C04807	Vital status	Status of participant/subject as alive or dead	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19132	C19132	Ventilator assistance utilization indicator	Indicator for the utilization of ventilator assistance on discharge	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C21632	C21632	Intensive care unit type	Type of intensive care unit the participant/subject is in	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C06002	C06002	Inpatient treatment total day number	Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19159	C19159	Care provision level	The level of care provided to participant by health care facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C22703	C22703	Serious adverse event form completion indicator	Indicator of whether the Serious Adverse Event (SAE) form was completed following an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02300	C02300	Adverse event study intervention action taken type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02309	C02309	Serious adverse event indicator	The indicator of whether the adverse event is serious.	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.