CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20378 Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale

The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C19405 Brain Motor Control Assessment (BMCA) - Magnitude value

Magnitude recorded as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19091 Urinary tract surgical procedure indicator

Indicator for surgical procedure on the urinary tract

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C22779 Vasopressor use date

Date (and time, if applicable) when the vasopressor was administered

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C58644 Diaper pad plug use past three month frequency category

Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19214 Pre-existing systemic neuro-degenerative disorder specify anatomic site

Specifies anatomic site of pre-existing systemic neuro-degenerative disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19423 Brain Motor Control Assessment (BMCA) - Similarity index value

Value of similarity index recorded for the designated test as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C22325 Laboratory procedure gonadal function sex hormone binding globulin serum value

The value related to concentration of sex hormone binding globulin in the serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19099 Upper extremity/hand reconstructive surgery indicator

Indicator for surgery on upper extremity/hand

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C18608 Kidney left excretory function measurement

The percentage of excretory function for the left kidney. The combined excretory function for the two kidneys is 100 %

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22339 Laboratory procedure anterior pituitary function insulin-like growth factor-1 baseline plasma value

The value related to baseline concentration of insulin-like growth factor-1 (IGF-1) in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19107 Upper extremity surgery right soft tissue tendon lengthenings performed indicator

The indicator for the surgical procedure of the restoration of right tendon/muscle releases or lengthenings in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19323 Spinal cord injury neurological level

Neurological level of spinal cord injury

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19260 Occupation secondary status

The status indicating the participant's/subject's current secondary occupational status

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Spinal Column Injury Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19355 Thermal quantitative sensory testing decrease rate value

Rate of decrease in stimulation intensity for thermal quantitative sensory testing

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19342 Measurement not reported reason

The reason that a value was not reported for a measurement

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19142 Activity type

The types of activities related to rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19312 Quantitative sensory testing threshold type

The type of threshold evaluated in Quantitative Sensory Testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C19326 Imaging frame of reference type

The type related to imaging of frame of reference

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental-Highly Recommended International SCI Core Data Set False Spinal Cord Injury Spinal Cord Injury
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
Displaying 76 - 100 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.