CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19501 Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text

The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19155 Specialized SCI center follow-up care indicator

Indicator for follow-up care from a specialized SCI center

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C19486 Leisure activity hour week count

The number of hours per week of spare time activities

Supplemental International SCI Activities and Participation Basic Data Set Spinal Cord Injury Spinal Cord Injury
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C22252 Dual X-ray absorptiometry distal femur bone mineral density value

The value related to bone mineral density (BMD) found in the distal femur through dual X-ray absorptiometry (DEXA)

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19459 Spine transverse cord diameter caudal measurement

Measurement of transverse cord diameter caudal

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19313 Quantitative sensory testing average threshold value

The average threshold value over all trials for the sensation and threshold types selected in Quantitative Sensory Testing

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19331 Imaging number of excitations count

The count as related to number of diffusion tensor imaging acquisitions or number of excitations

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C22281 Thyroid disease prior goiter diagnosis type

The type related to prior thyroid disease of goiter diagnosed

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19470 Spine upper level anatomic site

Anatomic site on the upper level of the spinal cord

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19338 Electrophysiology test coil location text

Text articulating the location of coil in electrophysiology test

Supplemental Motor Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C58649 Quantitative sensory testing decrease stimulation rate unit of measure

The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C19261 Imaging magnetic resonance imaging quality result

Image quality of magnetic resonance image

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19159 Care provision level

The level of care provided to participant by health care facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C19492 Spinal cord injury upper extremity shoulder function status

The status of shoulder function as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19785 Medical history pulmonary bilevel positive airway pressure start date

Date of start of bilevel positive airway pressure

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19128 Facility arrival date

Date when patient arrived at facility

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C20373 Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category

The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19188 Oral laxative medication indicator

Indicator for oral laxative medication use (within the last four weeks)

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19101 Upper extremity surgery right soft tissue reconstruction tendon elbow performed indicator

The indicator for the surgical procedure of the right tendon for elbow extension in soft tissue reconstruction

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19208 Pre-existing degenerative spine disorders specify diagnosis name

Specifies name of pre-existing degenerative spine disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C19408 Brain Motor Control Assessment (BMCA) - Muscle count

Number of muscles examined as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C22308 Laboratory procedure thyroid function free thyroxine plasma serum value

The value related to concentration of free thyroxine (FT4) in the plasma/serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 76 - 100 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.