CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0825-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09649	C09649	Food Frequency Questionnaire - (FFQ)-multi-vitamins taken week value	Amount of multivitamins subject takes per week, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1735-C12700	C12700	Electrophysiology motor nerve dispersion result	Amount of test signal dispersion measured during the motor nerve conduction study	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19462	C19462	Sagittal magnetic resonance imaging spine level anatomic site	Anatomic level of injury on the spinal cord in sagittal magnetic resonance image	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19451	C19451	Spine canal cord level anatomic site	Anatomic level of spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19410	C19410	Brain Motor Control Assessment (BMCA) - Test anatomic site	Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2082-C19410	C19410	Brain Motor Control Assessment (BMCA) - Test anatomic site	Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C19236	C19236	Sympathetic skin response epithelial anatomic site	Anatomic site of epithelial tissue as related to sympathetic skin response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19204	C19204	Pre-existing congenital deformity specify anatomic site	Anatomic site of pre-existing congenital deformity of spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19204	C19204	Pre-existing congenital deformity specify anatomic site	Anatomic site of pre-existing congenital deformity of spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06436	C06436	Neuro-Musculoskeletal condition anatomic site	Anatomic site of the neuro-musculoskeletal condition experienced or diagnosed	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19472	C19472	Spine lower level anatomic site	Anatomic site on the lower level of the spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19470	C19470	Spine upper level anatomic site	Anatomic site on the upper level of the spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C05452	C05452	Spinal injury anatomic site	Anatomic site(s) of the spine injury represented as level(s) of the spinal-injured vertebrae	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06252	C06252	Compression device type	Any compression device worn by the individual that may affect cardiovascular parameters during the examination.	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06252	C06252	Compression device type	Any compression device worn by the individual that may affect cardiovascular parameters during the examination.	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C10780	C10780	Electrophysiology anatomic site	Area of the body (e.g., nerve or muscle) where the type of electrophysiology study is performed	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.