CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 576 - 600 of 1886
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06411 Inpatient final discharge date and time

Date (and time, if applicable and known) of discharge from the last inpatient hospital when all planned acute care and rehabilitation phases of treatment are completed

Supplemental International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06313 Psychogenic genital arousal scale

Scale for how the female participant's psychogenic genital arousal is affected by the spinal cord injury

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06230 Bowel care facilitators other text

The text of maneuver used to facilitate bowel care

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19111 Upper extremity surgery right osteotomy humerus performed indicator

The indicator for the surgical procedure of the restoration of the right humerus in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06451 Neuromuscular scoliosis assessment method type

Type of method(s) used to determine the presence of neuromuscular scoliosis

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19282 Secondary death cause ICD-10-CM code

ICD-10 code that describes the secondary cause of participant/subject's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C06252 Compression device type

Any compression device worn by the individual that may affect cardiovascular parameters during the examination.

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental International SCI Skin and Thermoregulation Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06192 Fecal incontinence past three month average frequency

Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools

Supplemental International SCI Bowel Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22824 Injury below level cold allodynia intensity scale

The scale related to intensity if allodynia for cold below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06122 Renography radioactive isotope type

Type of radioactive isotope used to perform the renography

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

Supplemental International SCI Quality of Life Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19429 Brain Motor Control Assessment (BMCA) - Passive stretch type

Type of passive stretch assessed as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C22331 Laboratory procedure gonadal function estradiol plasma serum value

The value related to concentration of estradiol in the plasma/serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C18756 Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used other text

The free-text field related to 'Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD) - Drugs used indicator' specifying other text. Indicator of illicit drugs used by the subject as part of the Substance Abuse Questions from the TBI Model Systems Database (SAQTBIMSD)

Supplemental Substance Use Spinal Cord Injury Spinal Cord Injury
C14204 Emergency Medical Services (EMS) vehicle type

This refers to the Emergency Medical Services (EMS) vehicle that is used to transport the patient to the hospital. Choose one response

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19119 Upper extremity surgery right osteotomy fingers/thumb performed indicator

The indicator for the surgical procedure of the restoration of the right fingers/thumb in an Osteotomy with or without rotation and/or Anthrodesis

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Spinal Cord Injury Spinal Cord Injury
C19089 Neural element direct decompression indicator

Indicator of direct decompression of neural elements

Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19204 Pre-existing congenital deformity specify anatomic site

Anatomic site of pre-existing congenital deformity of spine and spinal cord

Supplemental International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C18145 Procedure perform time

Time of day at which the examination was taken measured in an hour/minute format (HHMM).

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06409 Skin thermoregulation pressure ulcer past year indicator

Indicator of the presence of a pressure ulcer during the last 12 months

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
Displaying 576 - 600 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.