CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0828-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0828-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C59691	C59691	Spinal cord injury social life satisfaction scale	Numeric response of social life satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C58652	C58652	Fall record time AM PM category	Category of the part of the day in which the time of the subject/participant's fall occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C58649	C58649	Quantitative sensory testing decrease stimulation rate unit of measure	The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C58648	C58648	Quantitative sensory testing increase stimulation rate unit of measure	The unit of measure for the rate of increase of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing increase stimulation rate value"	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C58645	C58645	Oral laxative drops liquid type other text	Text field for specifying other types of liquid oral laxatives	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C58644	C58644	Diaper pad plug use past three month frequency category	Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1780-C58643	C58643	Electrophysiology facilitation type	Type of facilitation or reinforcement employed in electrophysiology testing	Supplemental	Motor Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C58642	C58642	Cardiovascular disease family history type unknown indicator	Indicator of whether the type of cardiovascular disease of which the subject/participant's family has a history is unknown	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C58641	C58641	Cardiovascular disease family history type text	Text field for indicating the type(s) of cardiovascular disease of which there is a history in the subject/participant's family	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C55578	C55578	Sexual orientation type	Self-reported sexual orientation of the participant/subject	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C55478	C55478	Spinal cord dysfunction non traumatic other specify text	The free text field to describe the other type of non-traumatic spinal cord dysfunction	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C55476	C55476	Congenital genetic spinal cord injury etiology specify text	The free text field to describe the congenital or genetic etiology of spinal cord injury	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53075	C53075	Neurogenic bowel dysfunction total score	The total score for Neurogenic Bowel Dysfunction used for assessment of bowel symptoms in individuals with SCI	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53074	C53074	Abdominal pain discomfort last four week average frequency	The average frequency of abdominal pain/discomfort within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53047	C53047	Oral laxative tablet capsule granulate type	Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C53047	C53047	Oral laxative tablet capsule granulate type	Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C53047	C53047	Oral laxative tablet capsule granulate type	Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53041	C53041	Flatus incontinence indicator	The indicator related to flatus incontinence within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.