CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 601 - 625 of 749

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2169-C08622	C08622	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2955-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2954-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2951-C18707	C18707	Imaging pre-scan procedure type other text	The free-text field related to 'Imaging pre-scan procedure type' specifying other text. Type(s) of pre-scan procedures administered to the participant/subject	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2169-C08590	C08590	Risk Factor Questionnaire (RFQ) - military service city station longest text	The text describing the city the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2955-C16197	C16197	Biological sample in repository location name	The location of the banked biological sample or specimen, if known	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C08002	C08002	Family history relative type biological sample identifier number	Identification (ID) number assigned to family member's biological sample in repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2951-C18722	C18722	Imaging volume of interest anatomic location type other text	The free-text field related to 'Imaging volume of interest anatomic location type' specifying other text. Type of anatomic location used for volume of interest (VOI) for the imaging data analysis	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2169-C08598	C08598	Risk Factor Questionnaire (RFQ) - military service prisoner of war city text	The text describing the city the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2951-C59044	C59044	Imaging camera type other text	The free-text field related to 'Imaging camera type', specifying other text. Type of imaging camera used	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2169-C08606	C08606	Risk Factor Questionnaire (RFQ) - current job third duty text	Text describing the third of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2951-C59052	C59052	Imaging MRI acquire co-registration date and time	Date (and time, if applicable and known) of MRI acquired for co-registration with the imaging study being documented.	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2169-C08614	C08614	Risk Factor Questionnaire (RFQ) - longest occupation 25 year fourth duty text	Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2806-C09312	C09312	Apathy Scale (AS) - Start task ability no prompt scale	The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2950-C59026	C59026	Imaging radio frequency coil manufacturer name other text	The free-text field related to 'Imaging radio frequency coil manufacturer name', specifying other text. Name of the manufacturer of the radio frequency (RF) coil used for the imaging scan	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C59074	C59074	Diagnosis Parkinsons disease support sign type	Type of sign supportive of Parkinsons disease diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2170-C08524	C08524	36-item Short Form Health Survey (SF-36) - Times nervous score	Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F2950-C59038	C59038	Medication Parkinsons disease last dose date time	Time (and date, if applicable and known) of most recent Parkinson's disease medication dose	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C59082	C59082	Brain family member available indicator	Indicator of whether a brain of the participant's/subject's family member is available in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2170-C08532	C08532	36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score	Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08637	C08637	Risk Factor Questionnaire (RFQ) - longest occupation over 65 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3030-C54697	C54697	Epworth Sleepiness Scale (ESS) - Doze off likelihood sit read code	The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and reading, as part of the Epworth Sleepiness Scale (ESS)	Supplemental-Highly Recommended	Epworth Sleepiness Scale (ESS) - Adult Version	True	Parkinson's Disease	Parkinson's Disease
F2951-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2950-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2169-C18749	C18749	Risk Factor Questionnaire (RFQ) - occupation other text	The free-text field related to 'Risk Factor Questionnaire (RFQ) - occupation status' specifying other text. The status indicating the participant's/subject's current occupational situation as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease

Displaying 601 - 625 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.