CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 4416
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56345 NIH Toolbox Cognitive - Picture sequence memory age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Sequence memory Age 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C53743 Wide Range Achievement Test 4 (WRAT-4) - Letter 11 text

The letter used for Letter Recognition item 11, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab General
C53739 Wide Range Achievement Test 4 (WRAT-4) - Letter 9 text

The letter used for Letter Recognition item 9, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20564 TBI Quality of Life (TBI-QOL) - Cognition executive function T-score

The T-Score related to perceived difficulties in applications of mental function related to planning, organizing, calculating, and problem solving, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Concussion/Mild TBI
C53868 Wide Range Achievement Test 4 (WRAT-4) - Letter 7 score

Score for Letter Recognition item 7, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C52377 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sleep disturbance scale

Scale that rates the severity of how the subject now suffers from sleep disturbance as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Subacute Sport Related Concussion
C17362 Parkinson's Disease Quality of Life (PDQUALIF) - trouble balance scale

Rating scale for trouble keeping balance while walking as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
C22900 Manual Ability Classification System (MACS) - Level scale

The scale level related to the Mini-Manual Ability Classification System (MACS)

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C53864 Wide Range Achievement Test 4 (WRAT-4) - Word reading performance level category

The category to describe the subject's word-reading performance, as part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C09301 Apathy Scale (AS) - Learn eagerness scale

The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab Comprehensive
C18883 Orthosis other text

The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C55796 Test of Premorbid Functioning - Raw score

The raw score that the subject earned, as part of the Test of Premorbid Functioning

 NeuroRehab Supplemental-Highly Recommended Test of Premorbid Functioning False NeuroRehab NeuroRehab Comprehensive
C20576 TBI Quality of Life (TBI-QOL) - Learning memory T-score

The T-Score related to learning and memory, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Comprehensive
C18629 Brief Symptom Inventory-18 (BSI18)- Feeling blue scale

The scale for the participant's distress from feeling blue

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C07108 Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator

Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False NeuroRehab NeuroRehab Comprehensive
C07088 Alcohol Use Disorders Identification Test (AUDIT) - Drink injury indicator score

Score for the indicator of whether someone that the subject knows was injured due to his or her drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False NeuroRehab NeuroRehab General
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True NeuroRehab NeuroRehab Comprehensive
C52362 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Poor concentration scale

Scale that rates the severity of how the subject now suffers from poor concentration as compared with before the accident, as part of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C09947 World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale

Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C18103 Quality of Life in Swallowing Disorders (SWAL-QOL) - education scale

Education level of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C55688 PROMIS - Dyspnea Functional limitations carry weigh less 5 pound scale

Scale related to an individual being able to carry something weighing less than 5 lbs (about 2 kg, like a houseplant) from one room to another, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C11851 Frontal Behavioral Inventory (FBI) - loss insight score

The score the caregiver gives for the participant's/subject's loss of insight, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab General
C20773 Patient-Reported Outcome Measurement Information System (PROMIS) - Heart rate fast assessment past week scale

The scale which represents how often the participant had a racing or pounding heart in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and PHQ-15 - Feeling your heart pount or race

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True NeuroRehab NeuroRehab Comprehensive
Displaying 476 - 500 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.