CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 4416
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20487 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition response bias percentage value

Percentile for Recognition Response Bias portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab Comprehensive
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) False NeuroRehab NeuroRehab Comprehensive
C20584 TBI Quality of Life (TBI-QOL) - Stigma T-score

The T-Score related to others' perceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C53811 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 31 score

The score for Word Reading item 31, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C56304 NIH Toolbox Cognitive – Picture vocabulary age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C52370 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Dizziness scale

Scale that rates the severity of how the subject now suffers from dizziness as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C09930 World Health Organization Quality of Life (WHOQOL-BREF) - rate quality life scale

Scale used to assess quality of life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C10722 Walking primary assistive device daily use duration

Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C53807 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 29 score

The score for Word Reading item 29, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21830 Beck Anxiety Inventory (BAI) - Fear worst bother scale

Scale that represents how much the participant has been bothered by fear of the worst happening as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab Comprehensive
C07025 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire inhalant frequency

Frequency for how often the particpant/subject had a strong desire to use inhalants (nitrous, glue, petrol, paint thinner, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C58508 Dedicate speech generating device manufacturer name

Name of manufacturer of dedicated speech generating device

 NeuroRehab Supplemental-Highly Recommended Devices: Communication False NeuroRehab NeuroRehab General
C14839 Activities specific Balance Confidence Scale (ABC-Scale) - chair stand scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when standing on a chair to reach for something

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C20556 TBI Quality of Life (TBI-QOL) - Ask help T-score

The T-Score related to ability to and comfortability with asking others for help, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Comprehensive
C53771 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 10 score

The score for Word Reading item 10, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C54445 Functional Gait Assessment (FGA) - Gait level surface task score

Score for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21022 Frontal Systems Behavior Scale (FrSBE) - Swearing frequency scale

Frequency of swearing as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55705 PROMIS - Self Efficacy managing emotions relax deal with worry scale

Scale related to an individual being able to use relaxation to deal with worries, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab Comprehensive
C52380 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Irritable scale

Scale that rates the severity of how the subject now suffers from being irritable, easily angered as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C08533 36-item Short Form Health Survey (SF-36) - Sick easier score

Score of how true or false surveyee perceived the statement: I seem to get sick a little easier than other people, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
C58572 Dynamic lower extremity stretch orthosis splint use anatomic site laterality type

Laterality type of dynamic lower extremity stretching orthosis splints anatomic site used by participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C20574 TBI Quality of Life (TBI-QOL) - Independence T-score

The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C09373 Hamilton Depression Rating Scale (HDRS) - work activities difficulty indicator

Score for the participant/subject's difficulty, if any, with work and activities, as part of the Hamilton Depression Rating Scale (HDRS)

 NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) False NeuroRehab NeuroRehab Comprehensive
C20835 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale

The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
Displaying 351 - 375 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.