CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

Displaying 4226 - 4250 of 4416

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2873-C54279	C54279	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	NeuroRehab Supplemental-Highly Recommended	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	NeuroRehab	NeuroRehab General
F2869-C53759	C53759	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 3 score	The score for Word Reading item 3, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2881-C21480	C21480	Rey Auditory Verbal Learning Test (RAVLT) - Word list A type	The type as related to word used as part of List A in the Rey Auditory Verbal Learning Test (RAVLT)	NeuroRehab Supplemental-Highly Recommended	Rey Auditory Verbal Learning Test (RAVLT)	True	NeuroRehab	NeuroRehab General
F2903-C20553	C20553	TBI Quality of Life (TBI-QOL) - Anger T-score	The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab Moderate/Severe TBI: Rehabilitation
F2869-C53755	C53755	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 1score	The score for Word Reading item 1, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2870-C07179	C07179	The Galveston Orientation and Amnesia Test (GOAT) - Live location score	Scored ability to accurately state place of residence, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab Comprehensive
F2902-C17378	C17378	Parkinson's Disease Quality of Life (PDQUALIF) - difficulty adjust change scale	Rating scale for feeling difficult to adjust to the changes which have taken place in the body as part of Parkinson's Disease Quality of Life (PDQUALIF) form	NeuroRehab Supplemental-Highly Recommended	Parkinson's Disease Quality of Life Scale (PDQUALIF)	True	NeuroRehab	NeuroRehab Comprehensive
F2942-C58481	C58481	Dynamic upper extremity orthosis splint use anatomic site	Anatomic site of the dynamic upper extremity orthosis/splints use	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2862-C18637	C18637	Brief Symptom Inventory-18 (BSI18)- Weak scale	The scale for the participant's distress from feeling weak in parts of their body	NeuroRehab Supplemental-Highly Recommended	Brief Symptom Inventory-18 (BSI-18)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2863-C52368	C52368	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty text	The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- Second other difficulty scale' specifying the second other difficulty text	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab TBI Comprehensive
F2869-C53880	C53880	Wide Range Achievement Test 4 (WRAT-4) - Stanine score	The subject's scaled score on a nine point standard scale (with a mean of five and a standard deviation of two), as part of the Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2899-C17769	C17769	Rater name	Name of rater	NeuroRehab Supplemental-Highly Recommended	Apathy Scale (AS)	True	NeuroRehab	NeuroRehab Comprehensive
F2942-C21652	C21652	Elbow wrist orthosis type	Type of elbow or wrist orthosis the participant/subject uses	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2903-C20562	C20562	TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol T-score	The T-Score related to a set of injury and/or treatment related manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab TBI Epidemiology
F2868-C21910	C21910	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest item score	Item score calculated as a number of correct trials, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	NeuroRehab Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	NeuroRehab	NeuroRehab General
F2898-C07013	C07013	Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cocaine use frequency	Frequency for how often the participant/subject has used cocaine (coke, crack, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)	NeuroRehab Supplemental-Highly Recommended	Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST)	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2901-C09935	C09935	World Health Organization Quality of Life (WHOQOL-BREF) - life meaningful scale	Scale used to assess the extent to which the participant feels life is meaningful, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
F2942-C19066	C19066	Therapy rehabilitation session other text	The free-text field related to 'Therapy rehabilitation session duration' specifying other text. Duration of a therapy or rehabilitation session	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2862-C18623	C18623	Brief Symptom Inventory-18 (BSI18)- No interest scale	A scale to indicate how much a participant is distressed by feeling no interest in things	NeuroRehab Supplemental-Highly Recommended	Brief Symptom Inventory-18 (BSI-18)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2863-C52378	C52378	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Restlessness scale	Scale that rates the severity of how the subject now suffers from restlessness as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2895-C11867	C11867	Frontal Behavioral Inventory (FBI) - utilization behavior score	The score the caregiver gives for the participant's/subject's utilization behavior, as part of the Frontal Behavioral Inventory (FBI) form	NeuroRehab Supplemental-Highly Recommended	Frontal Behavioral Inventory (FBI)	True	NeuroRehab	NeuroRehab General
F2916-C20789	C20789	Quality of Life - Worry many situation assessment past week scale	The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2898-C07058	C07058	Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Other substance concern indicator	Indicator for whether a friend or relative or anyone else has ever expressed concern for the participant/subject's use of other substances not previously listed before, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)	NeuroRehab Supplemental-Highly Recommended	Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST)	False	NeuroRehab	NeuroRehab General
F2942-C12686	C12686	Orthosis type use indicator	Indicator whether the participant/subject currently uses the selected types of orthosis	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive

Displaying 4226 - 4250 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.