CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2942-C59011	C59011	Walking primary assistive device daily use duration not applicable status	Status indicating that the amount of time per day using the primary assistive walking device does not apply to the subject/participant	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C59011	C59011	Walking primary assistive device daily use duration not applicable status	Status indicating that the amount of time per day using the primary assistive walking device does not apply to the subject/participant	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58882	C58882	Assistive device other text	The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58882	C58882	Assistive device other text	The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58879	C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F2939-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F2939-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2919-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2919-C58680	C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C58680	C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2939-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.