CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1876-C19752	C19752	Gene mutation myotonic dystrophy repeat assessment count	Count of copy numbers of the mutated allele length	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1907-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19708	C19708	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator	Indicator of weakness felt within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19753	C19753	Gene mutation myotonic dystrophy repeat assessment length value	Length of the mutated allele	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12331	C12331	Respiratory manual cough assist session time	The duration of manual cough assist use per session	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19709	C19709	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale	Scale of amount of weakness within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C19667	C19667	Family history diagnosis type	Type of diagnosis method for relative	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19754	C19754	Gene mutation myotonic dystrophy repeat interruption assessment indicator	Indicator of whether repeat interruptions were found	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C19676	C19676	Muscle disease hereditary type	Specify if muscle disease type is hereditary	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19710	C19710	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator	Indicator of tiredness or fatigue within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C19668	C19668	Family history medical condition relationship type	Relationship of the family member with the medical condition or health related event to the participant/subject	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C19519	C19519	Disease condition associated name	Name of associated disease/condition	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19711	C19711	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale	Scale of amount of tiredness or fatigue within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19755	C19755	Gene mutation myotonic dystrophy repeat interruption assessment text	The type of repeat interruptions assessed	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C19677	C19677	Muscle disease inflammatory type	Specify if muscle disease type is inflammatory	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C19669	C19669	Family history diagnosis age value	Age at which relative was diagnosed with the disease in question	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C19520	C19520	Subject affected indicator	Indicator for the subject's being affected	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19756	C19756	Gene mutation myotonic dystrophy detect method type	The type of methods used to detect detect repeat interruptions	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C18696	C18696	Imaging dimension other text	The free-text field related to 'Imaging dimension type' specifying other text. Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19704	C19704	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator	Indicator of stiffness felt within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.