CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1060-C17965	C17965	Echocardiogram abnormal result comment text	Free text about echocardiogram results that are not normal	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12254	C12254	Biopsy and autopsy myopathy-associated pathological structures type	The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C10877	C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12365	C12365	Respiratory airway clearance medication concentration value	Value of the concentration of the airway clearance medication used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12325	C12325	Respiratory mechanical in-exsufflator exhale duration	Value of the exhale time setting for the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12262	C12262	Biopsy and autopsy microorganisms name	Name of microorganisms identified in biopsy or autopsy specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12833	C12833	ECG atrioventricular block third degree complete status	Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C18871	C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12374	C12374	Respiratory support positive pressure device delivery method type	Type of non-invasive, positive pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12333	C12333	Respiratory manual percussion use daily frequency	Frequency of use of manual percussion therapy on a daily basis	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12270	C12270	Biopsy and autopsy antibodies used name	List the names of antibodies used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C17954	C17954	Cardiovascular Holter exam atrial dysrhythmia episode duration	Duration, in seconds, of the atrial dysrhythmia episode	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12383	C12383	Respiratory tracheostomy tube size measurement	Measurement of the size of the tracheostomy tube	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12341	C12341	Respiratory lung volume recruitment session time	Time of lung volume recruitment use per session	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12518	C12518	Endomysial fibrosis severity status	Severity of the Endomysial fibrosis muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12407	C12407	Pulmonary gas exchange assessment date	The assessment date of the gas exchange measurement	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C18834	C18834	Ulna length measure tool other text	The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12415	C12415	Pulmonary blood gas partial pressure carbon dioxide value	The numeric value of the blood gas partial pressure of carbon dioxide (PCO2) in the blood	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12398	C12398	Respiratory support schedule daily hour value	Value of the number of hours of daily ventilation device use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12762	C12762	Electrophysiology quantitative sweat function foot measurement	The amount of sweat collected on the foot	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12719	C12719	Electrophysiology repetitive nerve stimulation study preactivation amplitude measurement	Measurement, in mV, of the amplitude of the preactivation being described for the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12423	C12423	Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value	The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12827	C12827	ECG axis direction indicator	Indicator of the direction of any axis deviation apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C17880	C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.