CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C54237	C54237	Echocardiogram pericardial effusion abnormal text	Free-text field to describe pericardial effusion or abnormality observed by echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C54235	C54235	Echocardiogram right ventricular posterior wall thickness end diastole measurement	Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C54234	C54234	Echocardiogram right interventricular septal thickness end diastole measurement	Measurement of right ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19759	C19759	Target RNA alternative splicing text	Text identifying the type of target RNA species were investigated and in which tissue	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19758	C19758	Target RNA alternative splicing indicator	The indicator of whether there were target RNA species for alternative splicing investigated	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19757	C19757	Gene mutation myotonic dystrophy other variant indicator	The indicator related to whether there were any additional variants/mutations in the specified genes	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19756	C19756	Gene mutation myotonic dystrophy detect method type	The type of methods used to detect detect repeat interruptions	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19755	C19755	Gene mutation myotonic dystrophy repeat interruption assessment text	The type of repeat interruptions assessed	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19754	C19754	Gene mutation myotonic dystrophy repeat interruption assessment indicator	Indicator of whether repeat interruptions were found	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19753	C19753	Gene mutation myotonic dystrophy repeat assessment length value	Length of the mutated allele	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19752	C19752	Gene mutation myotonic dystrophy repeat assessment count	Count of copy numbers of the mutated allele length	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19751	C19751	Gene mutation myotonic dystrophy repeat length assessment indicator	Indicator of whether the mutated repeated allele's length was analyzed	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19750	C19750	Gene mutation myotonic dystrophy detected type	Type mutations detected	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19749	C19749	Mutational analysis tissue specimen type	Type of tissue used for analysis	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C19736	C19736	Respiration intervention invasive tracheostomy tube indicator	Indicator of invasive respiratory support including a tracheostomy tube	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19711	C19711	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale	Scale of amount of tiredness or fatigue within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19710	C19710	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator	Indicator of tiredness or fatigue within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19709	C19709	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale	Scale of amount of weakness within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19708	C19708	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator	Indicator of weakness felt within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1874-C19707	C19707	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment scale	Scale of amount of pain within the last 24 hours	Exploratory	Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.