CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1036-C12454	C12454	Polysomnography transcutaneous carbon dioxide measured indicator	Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12495	C12495	Imaging pons abnormality type	The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12351	C12351	Respiratory high frequency chest wall oscillation system session time	Time of high frequency chest wall oscillation system use per session	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12462	C12462	Polysomnography heart rate total sleep value	Value, in beats per minute, of the selected heart rate (HR) measurement during total sleep	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12214	C12214	Gastrointestinal therapy continuous feed end time	Time of day that the participant/subject's continuous feeding is normally ended	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12319	C12319	Respiratory device type	Type of airway clearance or secretion mobilization device(s) used by the participant/subject	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12239	C12239	Electron microscopy performed indicator	Indicator of whether electron microscopy was performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C17931	C17931	Imaging magnetic resonance imaging performed indicator	Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12183	C12183	Dual X-ray absorptiometry proximal femur raw score	Dual X-ray absorptiometry (DEXA) proximal femur raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12430	C12430	Polysomnography sleep total duration	Duration for which the participant/subject was asleep during the sleep study	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12224	C12224	Gastrointestinal therapy feed schedule start date	Date on which the feeding schedule for gastrointestinal therapy began	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12327	C12327	Respiratory mechanical in-exsufflator session cycle set count	Count of the number of cycles completed per session when participant/subject used the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12191	C12191	Dual X-ray absorptiometry whole body bone mineral content value	The amount of bone mineral content (BMC) for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12438	C12438	Polysomnography blood oxygen saturation mean awake measurement	Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C17887	C17887	Gastrointestinal therapy continuous feed end time value	The value for the time of day that the participant/subject's continuous feeding is normally ended	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12479	C12479	Imaging cortex-pachygyria site type	The anatomical site(s) of the cortex-pachygyria	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C12417	C12417	Pulmonary blood gas bicarbonate value	The numeric value of the bicarbonate (HCO3) level in the blood	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C12301	C12301	Pulmonary Function Test seat position type	The seated position of the participant/subject during the assessment	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12335	C12335	Respiratory postural drainage use frequency	Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18858	C18858	Imaging pons abnormality other text	The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.