CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1038-C12401	C12401	Respiratory oxygen flow rate	The flow rate value of supplemental oxygen	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12526	C12526	Biopsy and autopsy type 1 predominance fiber percentage value	Percentage of Type 1 predominance fiber present	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C10964	C10964	Imaging eddy current induced spectral distortion correction indicator	Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12389	C12389	Respiratory ventilation mode assist control type	Type of assist control ventilation used	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C12831	C12831	ECG atrioventricular block first degree status	Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12727	C12727	Electrophysiology repetitive nerve postactivation area measurement	Measurement, in mVms, of the area of the postactivation being described at the time specified for the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C12935	C12935	Cardiovascular Holter exam ventricular contraction morphology type	Type of morphology of the ventricular contraction	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12240	C12240	Biochemical or genetic test performed indicator	Indicator of whether subsequent biochemical or genetic testing was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1997-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C11099	C11099	Pulmonary function test type	Type of pulmonary function testing performed	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1063-C05105	C05105	Surgical or therapeutic procedure end date and time	Date on which the surgical or therapeutic procedure ended	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C12786	C12786	Allele identifier name	Name that identifies which allele the associated data describe	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C18854	C18854	Imaging other incidental finding other text	The free-text field related to 'Imaging other incidental finding type' specifying other text. The type of other incidental findings found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1087-C17981	C17981	Other measure severity text	The text describing the specifics of the other measures of severity to test MG	Supplemental	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12195	C12195	Dual X-ray absorptiometry left arm lean value	Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C12874	C12874	Echocardiogram pulmonic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12483	C12483	Imaging cortex-polymicrogyria indicator	Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1053-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C17879	C17879	Polysomnography start time clock type	Type of clock used to record the time at which the sleep study began	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C12421	C12421	Pulmonary gas exchange lowest oxygen saturation value	The lowest recorded oxygen saturation (SpO2) value	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12428	C12428	Polysomnography study end time	Time at which the sleep study ended	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12232	C12232	Laboratory director name	Name of laboratory director where assessment was performed	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C12306	C12306	Ulna length measurement	The length of the ulna of the participant/subject	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1063-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C12794	C12794	Gene promoter deletion indicator	Whether known gene promoters were deleted	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.