CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C12494 Imaging pons abnormal indicator

Indicator of whether the pons appears normal or abnormal in the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12328 Respiratory mechanical in-exsufflator session cycle breath count

Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12204 Gastrointestinal therapy fundoplication age value

Value of the participant/subject's age at which s/he had fundoplication surgery

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Myasthenia Gravis Myasthenia Gravis (MG)
C12439 Polysomnography blood oxygen saturation distribution percent value

The value of the blood oxygen saturation (SpO2) percentage for which sleep distribution results are being reported

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental Vital Signs False Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12336 Respiratory postural drainage use daily frequency

Frequency of postural drainage use if it is used daily

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12213 Gastrointestinal therapy continuous feed start time

Time of day that the participant/subject's continuous feeding is normally begun

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C01012 Physical exam body system result type

Assessment result of each body system examined

 Supplemental Physical Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C12447 Polysomnography blood oxygen saturation drop hour awake count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C12653 Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) - score

The participant/subject's 15-item Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) score

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C10959 Spectroscopy spectral bandwidth value

Spectral bandwidth, in Hertz per pixel, used for both metabolite and water signal reference data acquisitions

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Myasthenia Gravis Myasthenia Gravis (MG)
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12182 Dual X-ray absorptiometry lumbar spine Z score

Dual X-ray absorptiometry (DEXA) Lspine Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12344 Respiratory lung volume recruitment pause time value

Value for the pause time setting for the lung volume recruitment device

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12223 Gastrointestinal therapy other oral intake estimate caloric value

Value of the subject/participant's caloric intake received through other oral intake

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C12455 Polysomnography transcutaneous carbon dioxide measurement grade

Grade of the transcutaneous CO2 (TcCO2) measurements being reported

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

 Supplemental Surgical History False Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 426 - 450 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.