CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2709-C56246	C56246	Predicted oxygen ventilatory equivalent value	The subject's predicted ventilatory equivalent for oxygen	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2721-C52874	C52874	Woodcock Johnson III (WJ-III) - Story recall stories 1-4 total count	Total number count of story recall stories 1-4 test responses, sum of WJ3StoryRecallStories12PtVal and WJ3StoryRecallStories34PtVal as part of Woodcock Johnson III (WJ-III) tests of achievement	Exploratory	Woodcock-Johnson III Test of Cognitive Abilities	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2707-C57102	C57102	Sleep problem diagnosis type	Type of diagnosis for sleep problem	Supplemental-Highly Recommended	Sleep Focused Study Questionnaire	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2765-C58217	C58217	Laboratory test tick borne disease sample type	Element related to the sample type used to test for tick-borne diseases	Supplemental	Laboratory Tests - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2699-C53784	C53784	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 17 text	The word used for Word Reading item 17, as part of Wide Range Achievement Test 4 (WRAT-4)	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2709-C56206	C56206	Oxygen maximum uptake versus predicted kilogram percentage value	The subject's maximum oxygen uptake compared to his/her predicted maximum oxygen uptake, both measured in kilograms, measured as a percent	Supplemental	Cardiopulmonary Exercise Testing (CPET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2798-C55573	C55573	Pain intensity visual analogue scale value	Value indicated by the subject/participant for his or her pain intensity using a visual analogue scale	Supplemental	Pain Assessment	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2572-C53667	C53667	Kiddie Schedule for Affective Disorders Present and Lifetime (KSADS-PL) - Interview date	The date of the interview, as part of the Kiddie Schedule for Affective Disorders Present and Lifetime version (KSADS-PL)	Exploratory	Kiddie-Schedule for Affective Disorders and Schizophrenia-Present and Lifetime Version (K-SADS-PL)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2759-C57901	C57901	Sensory light touch assessment status	The status of light touch (compare hand to foot) sensory (hands, feet) assessment in neurological examination	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2704-C20425	C20425	Beck Depression Inventory II (BDI-II) - Guilty feeling scale	Scale identifying level of guilty feelings, as part of the Beck Depression Inventory II (BDI-II)	Supplemental-Highly Recommended	Beck Depression Inventory II (BDI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C56719	C56719	Imaging magnetoencephalography source imaging other text	Text describing another source imaging parameter used for the analysis of the magnetoencephalography (MEG) data	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2699-C53744	C53744	Wide Range Achievement Test 4 (WRAT-4) - Letter 11 score	Score for Letter Recognition item 11, as a part of the Wide Range Achievement Test 4 (WRAT-4)	Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2760-C58089	C58089	Family health problems cardiovascular history type	Any type of cardiovascular health problems that the subject's/participant's family relative has ever been diagnosed with	Supplemental-Highly Recommended	Family Health History	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2747-C57916	C57916	Reflex ankle jerk assessment status	The status of ankle jerk reflexes assessment in neurological examination	Supplemental	Neurological Exam	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2758-C57977	C57977	Laboratory procedure globulin value	Value of globulin	Supplemental	Laboratory Test Results	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57600	C57600	Before illness exercise type text	Text field related to the type of exercise the individual engaged in prior to his/her illness	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57261	C57261	Immune symptom onset type	The type of general immune/infectious symptom(s) that the subject experienced at onset (within first month of illness)	Core	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2755-C56677	C56677	Imaging magnetoencephalography waveform trigger based average value	The waveform average value for trigger based averaging	Supplemental-Highly Recommended	Magnetoencephalography (MEG)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2726-C53929	C53929	California Verbal Learning Test Childrens version (CVLT-C) - Cued recall category	Category of a cued recall provided to the subject, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score	Supplemental-Highly Recommended	California Verbal Learning Test - Children (CVLT-C)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2722-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Neuroendocrine/Hypothalamic Symptoms	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2742-C57465	C57465	Daily activity exercise good day duration	Duration of how long an individual spends exercising (in hours) on a good day	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2750-C57937	C57937	Oropharyngeal exam status	The results of an oropharyngeal exam	Supplemental-Highly Recommended	Physical Exam - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2719-C58376	C58376	Blurry vision activity interference scale	Scale of blurry vision interference with daily living activities	Exploratory	Modified Orthostatic Symptom Grading Scale	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2724-C20546	C20546	Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale	The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Exploratory	Neuro-QOL Adult Bank - Fatigue	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2744-C50680	C50680	Examiner name	The name of the person performing the exam	Exploratory	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.