CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 2638
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental-Highly Recommended Medication and Other Treatments False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53910 California Verbal Learning Test Childrens version (CVLT-C) - List A item response text

Text that captures List A item response given by the subject as a single word, as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental-Highly Recommended California Verbal Learning Test - Children (CVLT-C) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55965 California Verbal Learning Test - Second Edition (CVLT-II) - Cued recall trial discriminability score

Recall discriminability score for cued recall trials, as part of California Verbal Learning Test- Second Edition (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17429 EEG abnormal indicator

The yes/no indicator for abnormal assessment of electroencephalography (EEG)

 Supplemental-Highly Recommended Non-Quantitative Electroencephalography (EEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56620 Imaging magnetoencephalography scanner manufacturer other text

Text describing another scanner manufacturer who produced the MEG scanner that was used

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

 Supplemental-Highly Recommended Diffusion Tensor Imaging (DTI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55920 California Verbal Learning Test - Second Edition (CVLT - II) - Cued recall animal correct word count

Number of correct words recited by the subject from List A that belong to the category animals , as part of California Verbal Learning Test- Second Edition (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09581 Brief Pain Inventory (BPI) - treatment received text

Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form

 Supplemental-Highly Recommended Brief Pain Inventory (Short Form) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53860 Wide Range Achievement Test 4 (WRAT-4) - Word reading percentile rank number

The subject's percentile rank of performance for word reading, as part of the Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

 Supplemental-Highly Recommended Beighton Score False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C57055 Post-exertional malaise outcome measure time indicator

Indication of timing of outcome measures in PEM study

 Supplemental-Highly Recommended PEM-Focused Studies Questionnaire False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58047 Extremities pulses radial left assessment value

The value of left radial pulse extremity assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C08241 Imaging field of view axis 1 measurement

Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters

 Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56610 Imaging data denoised indicator

The indicator relating to whether the data was denoised during preprocessing

 Supplemental-Highly Recommended Functional Magnetic Resonance Imaging (fMRI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53820 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 36 text

The word used for Word Reading item 36, as part of Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58148 Imaging surface electromyography electrode use indicator

Indicator of whether surface electromyography (sEMG) electrodes were used during the imaging session

 Supplemental-Highly Recommended Quantitative Electroencephalography (qEEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C17437 EEG supplemental reason

The free text field to specify the electroencephalography (EEG) supplemental form

 Supplemental-Highly Recommended Non-Quantitative Electroencephalography (EEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56628 Imaging magnetoencephalography artifact assessment other text

Text describing another type of assessment of artifacts performed for MEG imaging

 Supplemental-Highly Recommended Magnetoencephalography (MEG) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58007 Thyroid size assessment indicator

The indicator of thyroid size assessment in physical examination

 Supplemental-Highly Recommended Physical Examination False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15603 Imaging randomization technique type

The type of randomization technique used during stimulation

 Supplemental-Highly Recommended Functional Magnetic Resonance Imaging (fMRI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C10964 Imaging eddy current induced spectral distortion correction indicator

Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)

 Supplemental-Highly Recommended Diffusion Tensor Imaging (DTI) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58552 Imaging acquisition correct apply text

The free-text field describing the corrections that were applied during the acquisition of the imaging scan

 Supplemental-Highly Recommended Positron Emission Tomography (PET) False Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C55928 California Verbal Learning Test - Second Edition (CVLT - II) - Free recall intrusion raw score

Raw score for free recall intrusions of immediate and delayed trials, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C09589 Brief Pain Inventory (BPI) - pain enjoyment interference scale

Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form

 Supplemental-Highly Recommended Brief Pain Inventory (Short Form) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C53868 Wide Range Achievement Test 4 (WRAT-4) - Letter 7 score

Score for Letter Recognition item 7, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Displaying 76 - 100 of 2638

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.